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Swollen Stoma

Posted by Donz14, on Thu Jan 10, 2019 7:45 pm

Hi Folks

Happy new Year to all Smile

2019 has commenced with yet another partial blockage! I am well used to these now having lived with an ileostomy for 14 years and now have a good plan in place to deal with these at home in the hopes of avoiding a hospital visit where they don't really do anything apart from tell you there is a partial blocakage which usually clears on it's own and then they don't let you gp home for like 3 - 4 days to monitor your food intake and output etc. I find it a waste of time and if I can deal it with it at home I do. Although I do not recommend staying at home if thre is no output and you start vomiting - then get to hispital asap!! Also if the pain is too intense to bear then go to hospital for drugs for the pain and nausea


Thankfully the blockage cleared at home after a night of painful abdominal cramps. However although I now have usual output, my stoma doesn't seem to have really reduced back to normal size yet and it has been three days since the blocakage cleared.


It has ballooned to more than twice the normal size and is painful to touch. The other weird thing is I can actually feel any output going through and a slight burning sensation at the same time which is not usual

I have cut a larger hole in my pouch opening which has given some relief

Just wondering if anyone else has had this problem and how long it took for the stoma to go back to normal. I have always had a swollen stoma with past blockages but not as big as this and would normally have gone down a lot by now

I have read sugar helps but not too keen on the mess that would result from leaving my pouch off for 20 nns time that is suggested

Hoping it will subside in the next day or so .....

I am a 52 year old female and have had the ileostomy since I was about 38 as a result of years of severe UC

Any commennts welcome, thanks!  Smile 







Reply by NewlifeVictoria, on Thu Jan 10, 2019 11:44 pm

Happy new year to you to my soul sister warrior soounds like me some what but I was 48 now 54 severe ulcerative colitis and now crohns 4surgies anfbnitbfeeling well let’s chat ok my name I’ds Victoria thank you have a good day!!!!!!🤗

Reply by Bill, on Fri Jan 11, 2019 2:52 am

Hello Donz14. I had a similar swelling to that which you describe. I am reluctant to report that mine was due to an experiment I was conducting that went wrong and damaged the inside of the stoma.  To embarrassed to seek medical help, I just left it to (hopefully) heal. I can now report that it healed after about 2 weeks. I did consider using something like Bonjella, but when I've used that before on mouth ulcers, it stings. So I didn't treat the stoma with anything. I did however, refrain from using stoma plugs during the fortnight because I felt that they might congeal with the blood and be difficult to remove without causing more damage. Hence, some of the reasons for leaving  it to heal on its own.

I have to say that I was prepared to wait for at least 6 weeks before contemplating going to a doctor because that's the length of time other injuries have taken to heal in my case.  

I hope yours reduces in swelling soon and you can revert to your 'normal' routine without worries. 

Best wishes 


Reply by Donz14, on Fri Jan 11, 2019 5:21 pm

Thanks for your reply Bill.  Swelling is slowly going down so hopeful will be al good in the next day or two Smile 

Reply by Donz14, on Fri Jan 11, 2019 5:26 pm

Hey Victoria. Happy to chat anytime. Feel free to mesage me and we can share "war stories"

Reply by NewlifeVictoria, on Sat Jan 12, 2019 10:57 pm

Hi how are you i don’t know what to say except drink hot stuff and heating pad and idk I’m sorry but what did you do  different? Im

having pain and trying to rest right now but I’m here please text me a message thank you Victoria praying is important I’m 54 and in New Jersey I’m here for you if I can do anything I’m lost myself you have had it s long time same one? I had a couple ,,, will tell you more when you reply thanks hope your feeling better now how about grape juice hot tea ?? Waiting to here from you 

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