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Complete colectomy

Posted by Gidget, on Wed Feb 06, 2019 3:48 pm

Hi ostomates!  I had ileostomy 11/26.  I had slow transit constipation so the ostomy is just an experiment for a few months to see how my digestive system reacts to the non-use of my colon.  If well, then surgeon wants to remove colon.  If not, I will get reversal.  So far, I have had high output which confimrs that my colon is a problem and would support the colectomy.  However, I am concerned that I will have the opposite problem - going to the bathroom all the time and diarrhea.  Anyone have any advice, experience, thoughts?  I simply don't know what to do.  

Reply by Puppyluv56, on Wed Feb 06, 2019 6:37 pm

I cannot advise on this. My Colostomy was from Cancer so very different but I hope you find the fix you are looking for! I am sure someone has had this issue.

Puppy

Reply by Gidget, on Wed Feb 06, 2019 8:52 pm

Thanks Puppy.  I am sorry to hear about your circumstances but hope the colostomy is working.  

Reply by Puppyluv56, on Wed Feb 06, 2019 9:52 pm

Thanks but I am doing well! Almost a year! We are all in this together no matter how we got here! 

Puppy

 

Reply by vdahl, on Wed Feb 06, 2019 10:38 pm

Hi Gidget!

I went through the very same thing! So you probably have a "loop" ileostomy now, right? I did 2.2.17! For me, dealing with the ostomy is much less painfull than doing everything possible to go more that 10 days to 2 weeks... plus the doctor was quite concerned about a rupture. I started passing actual stool through the loop and would cramp up then finally eliminate. The surgeon said that wasn't a good sign so removed my colon and revised the stoma on 6.11.18. I am very happy.

I have a friend that had the colon removed but they immediately attached the small intestine. She went through about the same course of recouperation but as you mentioned, now has bouts of diarrhea several times per day.

Ultimately, you know your own body and your needs. One reason I decided I didn't care a lot about reconnecting was because of my age. I get along fine! Keep me posted, I'm always eager to learn a new perspective.

Be well, Vicki

Reply by Sasquatch, on Thu Feb 07, 2019 7:38 am

How much output are you having?  My normal is having to empty 6-7 times per day, and with an ileostomy the output does tend to be a little thinner.  I would guess that in your circumstance, you'd be a candidate for a J-pouch?  Keep us posted on your status, we can help you find your way through this.

Reply by InAZnLookin, on Thu Feb 07, 2019 1:22 pm

I had a colectomy with an ileoanal pouch in 2007.  They reminded too much of my rectum so it ended up leaking green slime out of my anus and have not been well enough 5 surgeries later to close my rectum.  So I fight embarrassment of anal leakage and haven't found a solution but find the colectomy much easier to manage life.  However, this entire ordeal has ruined any chance for intimacy and now I fight bigger health matters. Good Luck

Reply by Jmb1976, on Fri Feb 08, 2019 11:21 am

Hi Gidget,

Regarding hi output have you thought of irregation through the stoma. That may make you have bowel movements eventually at a certain time of day and not have the worry of being out and being stuck in the bathroom. Also there is a product called Sure seal that Edgepark sells that acts as barrier strips but is made of Tegaderm and allows you to shower and swim and not worrier about leaks and the wafer peeling off. Has your doctor have you work with a Dietitian because that could have a effect on your output.  

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