Seeking Uplifting Success Stories and Positive Vibes

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50
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1282
SharkFan
Apr 29, 2024 7:25 pm

Jess, 

I just celebrated my 4yr Stomaversary.  Looking back, I wish I had the surgery 10 yrs earlier.  I've been able to travel and play golf again like never before.  There have been downsides, always seeming to be tired and unmotivated to name a few.  I start my day with a shower and a song list that includes "Live until I die" by Clay Walker;  "It's going to be Okay" by the Piano Guys and  "Sweet Caroline" among others.  That gets the blood flowing and starts the day on a good note.  Heck, I've even thought about getting on a stage and singing them on Karaoke night.  Nothing will ever be perfect.  Just remind yourself to keep trying to get as close to it as you can.  

Keep up the fight, 

SharkFan

Pouch Potato
May 01, 2024 3:59 am

I've only had my ileostomy for 11 weeks, so I'd love to know the specifics of what you and your husband figured out for going out to eat, etc.

Posted by: domingo

Hello fellow ostomates, my life has changed since I met this wonderful French Canadian lady on this site on 3-17-2013. We were married on 12-20-2014 in Phoenix, AZ.

Jayne
May 03, 2024 11:55 am

Iterate MG's statement- ABSOLUTELY!

 

No matter how challenging - always focus on balance - and when times are tough, this is most often achieved by holding positive intentions.

 

Set new goals and look forward WITH POSITIVE INTENTION

 

waves from the Pembrokeshire coast ....

best wishes

 

Jayne

Jayne
May 03, 2024 12:03 pm

Well said - There is littlepoint in looking backwards and focussing on a life that one once throughth one was destined  to live - Today is now andtomorrow is first day of the rest of ones life!

 

Best Wishes

 

Jayne

Bilbo baggins
Sep 03, 2024 7:38 am

Great post

I lay in my bed a month after surgery feeling like S#3t

I gave myself a damn good talking to about the fact that I would not be here without my new best and sometimes troublesome friend Bilbo.

From that moment, I changed my attitude and my life, learning everything about my condition.

This site is a gold mine to me where I can meet real people, ask anything I want, and not be made fun of or abused.

Traveler, your advice is spot on; in fact, I am right now on my very first trip away from home.

 

My Ostomy Journey: Kimberly | Hollister

Play
RonnieB2
Sep 03, 2024 11:20 pm

Best of luck to you. I wish I had a successful story for you, but one positive thing is there were zero traces of cancer in my body after surgery.

Queenie
Dec 26, 2024 1:04 am

Hi Jess. I can relate to having occasional mood dips, so I'm offering my “bigger picture” story. I had a rare thing called a “giant diverticular pouch,” which is apparently its name, not hyperbole! Basically, it was described to me as a cricket ball-sized pouch full of poo and pus, which opened into my colon. As a result, I was getting sepsis increasingly frequently. I had my operation to remove the pouch, and because of my dodgy heart and the amount of muck, I ended up with a stoma, which took 10 hours of surgery to create and 2 months in intensive care to recover from. That's when the bad news ended. From previously being doubled over with pain and wondering whether I'd dodge dying with the next bout of sepsis, I am good friends with Sadie, my stoma; my pain is limited to an occasional headache, and I can plan holidays and outings. I was very concerned that I would develop antibiotic resistance before my operation; I was on the strongest and highest doses of antibiotics, oral and IV, before Sadie came to join me, and I haven't had any since then. I'm reading again, cooking, sewing, and doing all the banal stuff that I never expected to do again. Life is good, and I learn new stuff about life and the world every day, and see beauty and stars and sunsets and my son. I'm obsessed with the beauty of clouds, and I've had so much time since the operation to see amazing clouds! I hope I haven't bored you to sobs, but life is great, and things will be great for you. One thing that I suggest to everyone is vitamin B6 tablets, 100 mg a day. Our absorption of vitamins is probably imperfect due to a shortened colon, and B6 is a water-soluble vitamin that has a very similar molecular structure to antidepressants. Because it's water-soluble, you'll pee out whatever your body doesn't need. Sorry, I'm a pharmacist, and I can bore for Britain! Take care and feel better. You're not alone. Sending love.

Jayne
Dec 26, 2024 8:07 pm

Queenie,

Thank you so much for sharing your story - and your professional recommendation for B6.

Our bodies can hold so much bad bacteria and other infections - and sepsis can result from many forms of such being held over time - often remaining undiagnosed for many years.

You do not bore

Your story will be an empathetic read for many of us.

And Queenie, you certainly do not bore your readership.

Good to learn that once more life holds many pleasures for you.

Are you also a subscriber to the Cloud Appreciation Society? .... I realize that your dance with our environment will be deep and a sharing of a beautiful sunset is a perfect encounter as dusk leads us into the evening of our day ..... but if you have not come across the wonderful selection of photos that the CASociety publishes - do visit .... especially good for those who are bed bound and do not get out.

Thank you for sharing

And yes, life is good - especially after the many challenges lived through.

Best wishes

Jayne

Jayne
Dec 26, 2024 8:13 pm

Ditto - Journey Well

Jayne
Dec 26, 2024 8:20 pm

Radr24

Your family history and the journey you have made - to live again - but just in a new way - is an honest appraisal..... For yes, Jess, life may be a challenge at times - particularly when transitioning to a fresh and grateful mindset - we are all here for you, because, as Rod has said, "because we care."

Visit as you may - I hope your own 'today' has been a better one, and I look forward to all that life may hold for you.

Sending special thoughts and happy wishes on a feather to your nose.

Hug

Jayne

Jayne
Dec 26, 2024 8:27 pm

Good luck for May Day surgery, Kim - hope all goes well for you.

BW

Jayne

Jess B,

We support you - you are not alone!

Best thoughts

Jayne.

Jayne
Dec 26, 2024 8:31 pm

Goals are an important part of forward positivity - keep on making them.

 

BW

 

Jayne

Jayne
Dec 26, 2024 8:33 pm

Hope your husband's surgery goes well in May - best wishes to you both - whatever you subsequently decide.

 

Jayne

Jayne
Dec 26, 2024 8:35 pm

Yet, we are grateful.

And we learn in ways we never thought possible.

BW

Jayne

Jayne
Dec 26, 2024 8:44 pm

Wow!

Your point is well taken, Oluwa - life is unexpected, and yes, never let pain bully one - instead, get to know it and listen to your body - for it is well practiced at looking after us - but it needs its pilot member to be onside and part of our own team.

There are days - and sometimes they may linger a little too intensely - but there are the other days - so many as yet unexplored ...

We are our own best friend as well as our most critical 'enemy' at times.

Like Oluwa shares, learning to be our own best self is a lifetime's journey of discovery ......

Jess, you have much yet to discover - and the light will shine in if you let it do so.

Hugs from the UK

Jayne

.... Keep visiting, we are all here for you.

Jayne
Dec 26, 2024 8:51 pm

Too right - and to view ourselves within the greater perspective - simply amazing!

Am I glad to be living in an era where AI - if used discerningly, can open so many doors to our greater understanding - as world-conscious knowledge, joy, and delight - ever expand our consciousness.

Thank you, BRP - only way to be!

Best wishes

Jayne

Jayne
Dec 26, 2024 8:55 pm

Well, Jack,

It just shows how life can throw a curveball to best effect - and I'll be bound that you have a special engagement with clients - enhancing their various abilities to move forward - Thank you for choosing your path.

 

Best wishes, Jack.

Helping others to appreciate joy in their lives - a reward if ever there was one!

 

J

Jayne
Dec 26, 2024 9:00 pm

JessB,

In such a short time frame, you have a thousand views of sharing. It just goes to show that we can rise to the positive news of our own situations. Good luck going forward. We have a future awaiting us, past our 'now.' But please be caring, for the now is the changer. Now is where it's at. Being gentle also goes hand in hand with full engagement within the now. Be present, plan for tomorrow, learn from yesterday, and set goals along the way to a bright future.

Sends best thoughts this Boxing Day Eve.

Caledonia1
Feb 04, 2025 5:04 pm

I was given no choice at 20 - this or die. I went on to be the mum of 3 ❤️

Queenie
Apr 19, 2025 9:27 pm

Sorry to be so late replying; my memory is imperfect these days. Yes, I am a CAS fanatic, and my son met Gavin Praetor-Pinney. He's the neighbor of one of my son's work colleagues! We had a photo put on their page once; my heart still bursts with pride. It's so wonderful to meet another fanatic. We had some strange cumulus here yesterday, like a row of tubes, all very heavy with rain. I kept thinking, "Onward, Christian soldiers, marching off to pour!" You can see why Ricky Gervais is not threatened by me!

Cybercat
May 18, 2025 11:53 pm

I am a survivor of colorectal cancer, and I have had a permanent colostomy since 2011. I have had some really difficult times, and I have learned a lot over time. My ostomy nurse taught me how to irrigate, and with the help of magnesium citrate supplementation, I no longer have the severe pain and constipation I used to have. I irrigate twice a week, and I'm not poopy. I trained my body when to poop and when not to. Over time, we can gain some control even with an ostomy, so I thought I would share this with you. Be in tune with your body, and you can live a pretty normal life that way. I am also a believer, and God is good in every way. Much love!