I am really struggling with fatigue and low energy.

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51
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1986
warrior
May 24, 2024 8:52 am

Wow.. I had to up my prednisone, which helped this healing.

A few months ago, I had shingles (they think) on my leg and they gave me Valtrex. Knocked it out in a week.

Can you take or see if these meds would help you heal faster?

I'm sorry yours is being so stubborn. Evict it. 😁

Past Member
Apr 07, 2025 4:16 am

Fatigue and low energy? Have you ever tried the Complex Liquid Vitamin B12 Complex? There are four kinds of vitamin B12. The best absorbing type for your liver is: Methylcobalamin. It builds your appetite and gives energy by building more red blood cells and helps your liver survive. The next thing for energy is: Magnesium Citrate, 400 mg. Get the version combined with vitamin D3 + zinc! Good luck.

Posted by: Irjosh

I just wanted to tell all the users of this site that I really love having the opportunity to express my feelings here. I'm positive that many feel the same. I wish that all here come out of the experience you have here will be like mine. Support and understanding from others with issues similar like each other will help us all and give the relief we all crave, well, I'm selfish. I'm here because I need support. And I find enough here to help in the tough times. Thank you. I really mean it.

Plodding-on!
Aug 04, 2025 11:45 am

Hi, just to say hi and hope you are doing OK? If you ever need an ear, or to moan, groan, or grumble, or to share something positive and a bit of happiness... whatever it is, however you're feeling, by all means, please drop me a message day or night. Take care.

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic' but some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic,' but I'm some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

 

My Ostomy Journey: Keyla | Hollister

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Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic' but some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic' but some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic,' but I'm some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic' but some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic' but some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:41 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic,' but I'm some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:42 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic' but some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 12:42 pm

Hi. I'm also new here. I had a colostomy in November 2024 and an unexpected gift of a stoma. I recovered well until June this year, then I feel I have gone downhill. Physical fatigue, muscle pains in my legs, and I cannot walk too far (maybe a mile) without rest (compared to several miles before surgery). It's starting to impact my life too much. I had blood tests, but nothing significant, although I'm getting towards 'prediabetic,' but I'm some way off, and I take care regarding my diet. Doctors and nurses do not offer anything else....

Philip P
Aug 29, 2025 4:36 pm

I also have developed quite serious fatigue following an initial good recovery.

aTraveler
Aug 29, 2025 4:51 pm

Are you staying hydrated? Dehydration can cause fatigue. Add rehydration solutions to your routine. Although dehydration is a larger concern with ileostomies, those with colostomies have to be alert to the symptoms also.

sarellie48
Aug 30, 2025 8:56 pm

Evening, a traveler. Thanks for your message. Yep, I am staying hydrated; that's one thing I have never had a problem with. I took a private blood test, and they said my red blood cells were enlarged, which could be a folate deficiency or dehydration. However, I was just in the line for low folate, so they said I was probably deficient in that. They said anything low normal in NHS or other blood tests should be treated as a deficiency due to the missing bowel. If I went private, I would be treated for iron, folate, and vitamin D deficiency. The NHS won't accept this as I am just on the low normal or slightly over it. I think this is why I never got better. I haven't got funds to go private, so I am looking at other solutions. It's early days.

aTraveler
Aug 31, 2025 2:48 am

How you stay hydrated matters. Are you drinking ORS?

sarellie48
Aug 31, 2025 7:01 pm

I have tried all sorts of oral hydration to see if it improves my fatigue. I have tried St. Mark's solution, Dioralyte, Phil's, Gatorade, Lucozade Sport normal and diet, and High Five Zero. Nothing improved it; I only got heartburn and a tummy ache, lol. I never had symptoms of dehydration. I was told to drink whole milk as that was full of electrolytes. I just always had malabsorption problems showing up through blood levels.

I have ordered ORS via Amazon as I am a sucker for a recommendation, but I am not hopeful. I can see it sitting in the drawer after a few days' trial with all the other ones, lol, as I have had enough of the heartburn and tummy ache and no change to my fatigue. However, I will try anything at this stage. So you never know. Berocca helped for a bit, but I had to take at least 6 or 8 a day, and it was too much citric.

There must be a solution out there.

aTraveler
Sep 01, 2025 7:25 pm
Very helpful

The following are the ones I have at different times:
• Fluid Tactical ORS
• DripDrop
• Liquid I.V.
• Trioral ORS

Fluid Tactical is specifically formulated for intense physical activity and boasts a higher electrolyte content, including magnesium and zinc.
    • Each packet contains 816 mg of sodium, 370 mg of potassium, 100 mg of magnesium, and contains 25% daily value of Vitamin C and zinc.
    • The formulation aligns with World Health Organization (WHO) guidelines for effective rehydration.
    • Uses sodium citrate instead of sodium chloride — sodium citrate is used for better taste and reduced stomach irritation.
    • Available in many different flavors

DripDrop is a medically formulated oral rehydration solution (ORS) designed to treat mild to moderate dehydration effectively.
    • Each packet contains 700 mg of sodium, 410 mg of potassium, 90 mg of magnesium, 3 mg of zinc, 7 g of glucose, and 70 mg of Vitamin C.
    • B vitamins (in DripDrop Zero): Includes B3 (niacin), B5 (pantothenic acid), B6 (pyridoxine), and B12 (cobalamin).
    • Available in different flavors and a sugar-free version

Liquid I.V. is a consumer product designed for everyday hydration. Liquid I.V. is effective for mild dehydration.
    • Each packet contains 500 mg of sodium, 370 mg of potassium, 500 mg of Vitamin C, 20 mg of Vitamin B3 (niacin), 10 mg of Vitamin B5 (pantothenic acid), 2 mg of Vitamin B6, and 6 mcg of Vitamin B12.
    • The exact amounts can vary slightly between different Liquid I.V. flavors and product lines (like their "Hydration Multiplier" vs. "Sugar-Free" versions).

Trioral ORS follows the WHO's recommended formulation for ORS. This is significant because the WHO formula is based on extensive research and is considered the gold standard for treating dehydration due to diarrhea.
    • Each packet contains 13.5 g of glucose anhydrous, 2.9 g of trisodium citrate dihydrate, 2.6 g of sodium chloride, and 1.5 g of potassium chloride.
    • Trioral is primarily focused on rehydration, especially in cases of dehydration due to diarrhea, vomiting, or excessive sweating.
    • Because it doesn't contain any artificial flavors or sweeteners, Trioral has a more neutral or slightly salty taste.
    • Compared to commercial ORS (e.g., Liquid I.V., DripDrop): Trioral is generally more focused on basic rehydration using the WHO formula, while some commercial ORS may include additional ingredients like vitamins, minerals (magnesium, zinc), or flavorings.

I am currently using Trioral; I order it in 100 packets at a time. Fluid Tactical may be a good one for you to try since it uses sodium citrate, which is easier on the stomach.

One thing that is constant with an ostomy is you should continue to experiment. I continue to experiment with different products because I never know when my insurance may decide to not cover a product, and I prefer to have alternatives available.

sarellie48
Sep 03, 2025 11:41 pm

I looked up fluid tactical, but it has sugar and is only available in the U.S. After my operation, I found Lucozade Sport and Gatorade helped, but they raised my sugar levels and made me nearly diabetic. So, I had to get off them. I have been using ORS effervescent tablets for the last few days, and there is no difference. I am just going to try the vitamins route first, as I have had improvement.

Bob 48
Sep 04, 2025 4:05 am

Are your vitamin D and iron levels in the normal range?

sarellie48
Sep 07, 2025 12:35 am

Most of the time they aren't as I can't take supplements.