Why Does My Ileostomy Smell Worse After Sleeping?

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Hisbiscus
Jun 02, 2023 2:14 am

Thanks for your words because it has been getting me down. Recently, I noticed a defect in some of my mio pouches that I use. I think output is micro leaking smells from the Velcro ends. One night, there was output on top of the Velcro, the side with the tabs, and it was a totally new bag and had not even been emptied yet. I've always questioned these Velcro ends from the start. Maybe I have been smelling. If so, that stuff will get into your clothing, bedding, etc... Anyhow, I am back in my Convatec Active Life Hard Convex that has a clip for now. I always felt secure with my clip that nothing was getting out. Maybe the mio was just not for me.
I'm sure you're right though about her wanting attention. It sure seems that way. She does try to draw attention to herself on a regular basis. Regardless, she still deserves the fart spray, lol!

Past Member
Jun 02, 2023 10:46 am

I had some of the earlier posts that I didn't see until now, but for the end of your bag, try baby wipes. That's what I use to wipe the end of the bag along with inside toward the end as well.

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When I found this web site, I didn't think its name had anything to do with actually meeting an ostomate but I later learned there were some folks who did meet and develop relationships. How good is that? That wasn't my intention. I definitely didn't want anyone to meet me. I felt broken and wasn't prepared to express those feelings. I thought it was a place where ostomates wrote about themselves, posed questions, shared thoughts, told jokes and, sometimes, just vented. I thought of it as a community of folks with similar interests and various degrees of experience. Mostly I found some of the most caring, selfless, wise and understanding people I ever imagined. I was so impressed with some of the writings; not because of their literary value but the way in which they addressed such a very complex environment. I read hundreds of exchanges and admired the way folks cared for each other. I became hopeful with my own situation and looked forward to the next day's offerings. Certainly some contributors stood out with their experience or particular skills in addressing some things but it seemed like a total effort with synergistic results. I felt blessed to have found this site. I still do.
Mike

Hisbiscus
Jun 03, 2023 10:58 pm

I used to use wipes until they started reformulating them all by putting in aloe, glycerin, vitamin E, which is oily, and some other oily things that caused my pouch seal to go. I'm always on the search for some that don't have anything but cleansing ingredients in them. I've even found regular baby wipes that were perfect, and then a few months later, Amazon discontinued them. I wish the pouch manufacturers would come up with a pouch-friendly wipe that can be used to wipe the ends. They do have cleansing wipes, but they are adhesive remover cleansing wipes, so those are a no-go.
I wanted to add that I rinse with water, so that's how the oily residue from the wipes gets up into my pouch.

Mumma Bear
Jul 15, 2023 5:38 pm

Hi,

You may already have found something that works for you now. (It's my first time on the site today) but I was recommended to put half an extra strong mint in my bag for odor. Trust me, it works a treat and is cheap and easy to transport.

Hope this helps.

Hisbiscus
Jul 17, 2023 3:36 am

Hi folks,

Update in the situation. This situation took a turn for the worse. The woman was obsessed with harassing me. Police were called and she told the officer that she did not like when I run my bathroom fans and he told her she can use her fans and that this is apartment living and she has to get used to it. Found out later that 5 people in my complex were connected to my internet. All kinds of devices were connected. I ultimately decided to get out of there due to her harassment amongst other reasons. I felt like I was in prison living there. She watched every move I made. She'd be in the window when I would pull in from work etc. It was very unsettling to say the least. I never in my life ran into a wacko like this. I now know they exist.
Not having any smell issues where I'm at now and no one is complaining. My confidence has gone back up again.

 

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