Hi everyone ,
Surgery jan 2016
am i really the only one ? i have yet to come across anyone else . long story suprapubic didnt work to many UTIs , was left with a choice of stoma or conduit drain through belly button . choose stoma . UTI are so bad am on antibiotic 24/7 and home care flushes my bladder every week
I don't really have any information on that subject. Just want to say I am sorry you are having so much trouble. Maybe someone can say more. Stay safe
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Hello everyone!!!
It has been almost a year since joining this site. I just wanted to share. I know a lot of people get concerned about meeting someone on here. I'm not a lifer membership and I had someone initiate to take me out. I've been divorced since 2009. He lives in Chicago. I ignored the first time thinking he was joking. I live in Milwaukee. So a month later he sent me a message through this site saying he wanted to meet me. That was in April this year. I must say it was the best thing that could happen to me. We talk almost every day. We have so much in common. He comes up all the time to spend the day or weekend together. It really does make a difference when someone has an ostomy like you. Such understanding and we always have something to talk about. I want to share because sometimes people think it's hard to meet someone or they say this site doesn't work. I'm a testimony that this site does work. We are talking marriage this time next year. I will keep you posted.
I was age 9 when I got a suprapubic tube and had the ostomy surgery a year later. I still have my bladder 45 years later. It didn't give me problems with infections until my teens. Eventually, I learned how to self cath and irrigate it with liquid antibiotics, which I still do today, 45 years later. It works well for me. You don't have to take oral antibiotics if you can flush things out on a regular basis. Your situation should level out and you can learn how to irrigate yourself. I would also highly recommend that you irrigate daily for a while until the infection is under control. The key is flushing the bacteria out! Good luck!
I myself have an Ileal conduit and still have my bladder- although it's probably the size of a walnut at this point- and I also have a friend that is a double as well with an ileostomy and a superpubic tube. He has had both since the 80's and just last year realized he was getting infections from the sp tube because he had become allergic to the latex surrounding the sp tube. He has since switched to something else- I will have to find out again. But, his flushing with Gentomyacin has become less frequent and less painful.
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