I have had my stoma 4 8 year I also have a ileal conduit wee stoma so I have 2 bag. I had a major compression in my spine damage all my nerves.
I have had 3 refashioned stomas I had the 1st where I was open up the middle big operation. Next 2 the pulled fresh bowel through. I had these extra operation due to get granulars like little white wart that bleed so much I am anemic. That why the redone the stoma I had the last operation in January.
They are coming back again I see the consultant last week. Next operation would be cut up the middle again and a new site made it would be under where my stoma is now. But I like the consultant want to wait.
I went to see the stoma nurses they told me what type of new bag I would need and give me a nice clean up they said I keep my stoma so clean.
I am like that the company I use to get all my supplies have there own stoma nurses so I get a home visit every week if I want the nurses at the hospital know my stoma nurses so I am very lucky the hospital stoma nurses never discharge unlike most hospital that dont see u once u finish with ur consultant.
I am 62 I have had 12 operation since 2008 all major operation all through this 1st compression.2 of the operation have been on the top part of my back the other in the same lower back that was the worse pain ever worse then my bladder removal .
The point is I carry on with my life I am disabled now all because the 1st compression was left for 6 days I sued and they settled out of court. I would give it all back if I had my health back. I lost 12 years it's been.
I have made the most u have mishaps with the bags leak I have 2 stomas to look after. I change my whole lot every 2 days I use a lot of bags.
I use a 2 piece bag and base plate all I do is un clip my old bag clean then clip new bag on I have used so many types of bags and base units.
My life as changed so much. I wont say having a stoma or stomas as not made any different it as.
I have had 2 major operation due to hernias so I have mesh the others were incisional hernias.
As my belly as swollen and I have put on weight I wear loose tops if the tops are tight u do notice the bag . I got used to the bags. Good with the wee stoma I put I night bag on and I never wake as my wee gos into the bag.
So plus and minuses. Point I have told u all this I have seen so much pain and suffering and watched and talked to people who are suffering mentally.
I have seen theres always someone worse then u. So just live ur life to the full . As u get older u just get so used to doing ur bags it gets easier.