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Ostomy vs Colostomy vs Urostomy...Proper terminology

 
This is the best website for people with an Ostomy. So much understanding.

Greeting,

I'm relatively

new to my Urostomy so I'm doing a lot of research on appliances, reviews, how-to's, YouTubes, etc. I am having a beef with how the word 'Ostomy' is thrown around. From what I understand, there are basically 3 types of Ostomies (Colostomy, Ileostomy and Urostomy). When I find an article or YouTube, etc., they use the 'Ostomy' term in the title and it most always is about Colostomies/Illeostomies). I am hoping to find something on Urostomies but invariably, 98%, it turns out not to be on Urostomies. So you never can tell what the info is going to be about until you open the article. Waste so much time.

There is a tremedous amount of info on Colostomies, but very little on Urostomies, in comparison. But it is driving me a bit crazy that the general term of 'Ostomy' seems to be synonymous for 'Colostomies'. Maybe I am wrong, but it makes it so difficult and time consuming to track down info on Urostomies. I can click on a 'Ostomy' topic only to find it is not about Urostomies, over and over again. I wish the industry and Internet postings would be more mindful of the proper terms so we don't waste our time searching and not finding the topic we think it is about. Is it just me???

Just my 2-cents and blowing of a bit of steam...

Gary

 

Hiya Gary:  Common problem in many areas beyond ostomies.  Language usage can get awfully lazy sometimes.  Frustrating when you're looking for specific info.  I assume colostomies and ileostomies are more common than urostomies, but that's just a guess under the circumstances.  Perhaps a good opportunity for you to fill the void, my friend.  Good luck and stay well.   HenryM

MeetAnOstoMate - 28,297 members
 

I am not sure what information you are looking for but here is a site I found that has a lot of information,                                                               https://medlineplus.gov/ency/patientinstructions/000477.htm

 

Good late evening to all,

I agree with Gary hard to find info and agree that there seems to be less urostomies., but I think just over looked 🤔.  But we are all related to  each other due to our stomas and we need to wear pouches. And we all have a new passage on how our body output our waste.

 Looked up info and maybe some info might be useful 🤔.

Bladder is removed, your doctor will create a new passage where urine will leave your body this is called a urostomy. Guessing  UR = URINE. think it is the same for ILEO AND COLO. 

 I just learning this  and think I got it lol. But good thing.

Also I looked up how my new goodies aka my bladder work and how they made it.  the following by sesrch. 

Hx of ileal conduit diversion = explains everything pretty much and now reading remember doctor in my head telling me but only remembering doc saying YOU HAVE BLADDER CANCER SURGERY. no bladder and then it went silent in my head.  Sorry all just flashing back a moment.  😔😎

Just wanted to share and still new here but have learned so much from everyone and so much more I am sure. 

Take care all 🥳

BAYS 🐾🦋🧚‍♀️

 

Hello Garry.
Thanks for your post.
This is a good place to let off steam when things like this are becoming frustrating – and they can do that quite often!
The term ‘ostomy’ is a generic one: The dictionary definition is:
‘A surgical procedure creating an opening in the body for the discharge of body wastes.’
This includes all three types that you mention.

However, according to Wikipedia - a ‘stoma’ In anatomy, a stoma (plural stomata /ˈstoʊmətə/ or stomas) is any opening in the body. For example, a mouth, a nose, and an anus are natural stomata. Any hollow organ can be manipulated into an artificial stoma as necessary. This includes the esophagus, stomach, duodenum, ileum, colon, pleural cavity, ureters, urinary bladder, and renal pelvis. Such a stoma may be permanent or temporary.

The internet tends to list things in a way that presents the most written about at the top of the list in search engines. So, when and if you want to be specific, it would be better to avoid the generic terms such as ‘ostomy’ or ‘stoma’ and go for the word you really want – such as ‘urostomy’.

I’m sure many of us share your frustrations with trying to find specific information on the web but usually there is something out there if you know how to look and have endless patience.

Another option - while you are on this site, is to go into 'COLLECTIONS' ( at the top of the page and look in urostomies for posts on this subject.

I hope this helps.

Best wishes
Bill

 

Why not Google "Urostomy?"

Take care


 

Gary, There is a group called bcan that deals with bladder cancer and Urostomys. Also At Memorial Sloan Kettering in N.Y. they have support group meetings i believe it's the third Thursday of each month but you can go to there site and sign up and they will let you know ( these are done on line). They members with Urostomys, social workers and a wound care nurse on there.All the best

 
looking58 wrote:

Gary, There is a group called bcan that deals with bladder cancer and Urostomys. Also At Memorial Sloan Kettering in N.Y. they have support group meetings i believe it's the third Thursday of each month but you can go to there site and sign up and they will let you know ( these are done on line). They members with Urostomys, social workers and a wound care nurse on there.All the best


Thanks, I will take a look at the Sloan Kettering on-line meetings coming up. I find that BCAN deals mainly with pre-surgery information about bladder cancer. I don't see much on post-surgery for the day-to-day dealing with an ostomy. But thanks for the Sloan Kettering info.

Gary

 


Deziner wrote:

Why not Google "Urostomy?"

Take care

Deziner - I've done that and just like Gary - get mostly colostomy articles.  It's very difficult to find specific info on urostomy - even on the UOAA site with is supposed to be for all ostomites.  

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