I have contours around my stoma. My stoma is an innie, not an outie, so I use a barrier ring. I change my bag every 24 hours, which is better than the last product they had me using, but still, it's a lot of changing. Does anyone else have this problem, and have you solved it?
G-ma 1053
Jul 24, 2021 8:20 pm
w30bob
Jul 25, 2021 2:26 am
Hi G-ma,
So starting with the basics... are you using a convex barrier? Which barrier are you using? The Sensura Mio Convex isn't convex. I found that out when I looked at my samples they just sent me. The overall shape is convex, but not the area surrounding your stoma... which is what people normally call convex. You say you're using a barrier ring... which one? They come in different thicknesses. Are you using just one... or are you stacking two together? Or do you use pieces of the second ring to fill in the low spots in your skin? C57 mentioned paste... do you use the paste with your barrier to help fill in the low spots in your skin before you put the ring and barrier on? Let us know what you're using specifically. Have you seen an ostomy nurse? Your problem should be fairly routine to them, and even if there isn't one near... they can still set up a Tele-appointment via your laptop or tablet and you can show or describe to them what's going on.
There are folks on here that change every day. I change every other. It's certainly not ideal, but not the end of the world either. Ostomy products are expensive, so if your insurance doesn't cover them... it really sucks.
Regards,
Bob
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Posted by: Karen & Stella
Fay,
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
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Mark1070
Jul 26, 2021 12:18 pm
I'd check with a good WOCN. All the recommendations above should be considered. I'll add, try a supplemental adhesive as well, like Torbot or SkinTac.
G-ma 1053
Jul 26, 2021 10:22 pm
I use flat. The convex did not work. I'm doing much better now. The last two have lasted two days. I use one barrier ring from Hollister, and we've discovered a way to make it fit my stoma better so the poo goes over and into the bag. I love all the suggestions from everyone; it has been helpful. I went to the wound care nurse today, and she said things are going much better. The problem was I tried to tell them the convex wasn't working, they did not send a belt, but no one would listen, and they wouldn't bring me the flat ones. I now have everything I need, and things are going much better. Thank you.
My Ostomy Journey: Kimberly | Hollister
Past Member
Jul 27, 2021 8:20 pm
Hi G'ma,
The lower half of my stoma is sunk inward and I use the convex 89511 one-piece Hollister with half a 7805 adapt barrier ring on the low side below my stoma and it works well. I usually get 6-7 days out of it.
Glad you're finding answers that work. Keep us posted.