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Looking for recipes and/or tips

Sun Aug 15, 2021 8:02 am
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Hello everyone! I've had my ileostomy (Penelope haha) for a few years now. I've recently wanted to start eating healthy and getting into shape. However, I have the type of personality that, if something is overwhelming to me, I shy away from it. Trying to figure out healthy eating with an ileostomy, well, was overwhelming to me. A coworker of mine suggested to try a forum, so here I am :) 

Does anyone have any tips/ recipes for healthy eating? Most of the healthy recipes I come across are recipes that include items I cannot have. Any advice would be greatly appreciated!!

These are the top 5 issues ostomates face:

1. Dating and relationships
2. Concealing the pouch
3. Foods to eat and avoid
4. Losing or gaining weight
5. Pouch ballooning

Check out this video from MeetAnOstoMate.
Past Member
Sun Aug 15, 2021 8:05 am

Hi Noodle,

 

Try the veganostomy.ca site. It isn't just for vegans, but there are lots of recipes on that site , developed by ostomates, for ostomates. 

Laurie

Sun Aug 15, 2021 8:09 am

 

  Padfoot wrote:  

Hi Noodle,

 

Try the veganostomy.ca site. It isn't just for vegans, but there are lots of recipes on that site , developed by ostomates, for ostomates. 

Laurie

 



Thank you so much, Laurie! I will check out that site now

Sun Aug 15, 2021 2:44 pm

Hi Noodle, I have my ileostomy since I was a teen ( I'm Marsha)  as a result of UC...   That's over 50 years...   Once I had the surgery,   I was able to eat just about everything....but was " cautious" with raw, and heavily fibered foods...  sosme  nuts were ok.... raw carrots no....lettuce fine,   cabbage not so much ( some cole slaw ok....it marinates).    As an adult I loved to cook, and have to admit, I didn't always eat healthy....loved pasta...chinese food...and all the other heavily carbed foods....not healthy.   Then I spent 2 weeks visitng my vegan son, and his family, and ate what I could of their very healthy diet ( ommitting what I knew I coudn't eat)  I lost 10 pounds, and  got an " education"..I came home and started to change the way I was eating....using less fats healthier choices...  meatless meals....  using  the dietary guidlines that worked for me...   It was challenging, and lasted about 3 months...   The lasting effects were.....learning that preparing meals/ cooking in general,   is using the ingredients yo want or need to use, in a healthier way...   Read " vegan recipes",  use or discard...what you know you can't digest...  Ex..  I  made   Asian flavored ground turkey/ lettuce wraps.....but ommmitted the nuts ( which I can no longer have )  and crunchy raw ingredients....and substituted cooked ingredients instead..    It was a delicious mixture...  and if you can't eat lettuce,   you can substitute a low cal. wrap..   Lose the fear, gain the confidence, to experiment....work with varying your spices...to change the taste of the same " old " basics....   It can be fun, if you like to cook,  or you can feel " deprived" and make yourself sad... ( that's what use to happen to me).   These days are a real challenge for me.  I delveloped another " gastric condition"...similar to IBS, but since I have no  large intestine, I have  issues with dehydration,  and " the runs"..   not good.   So basically....I'm off all healthy foods....Raw fruits and veggies...no artificial sugars., or real sugars ( I'm diabetic as well)  can use onion and garlic ( flavors) but not eat the real thing...no lemon or lime (   I was guzzling crystle light ...)   So " healthy" meals now...is more of a challenge.   Chicken & baked potato?  oatmeal, proteins...   ( It's called the fodmap diet).    It's not " forever"   but I have to carefully test....each type of food...   Just because I can eat it one day, doesn't mean it will sit right the next..   If any readers out there are having excess gas or bloating...... ( my pouch can fill with air in an hour or less)...   look into t he diet...    It's not an easy solution....but it works.   Most of my doctors had no idea what was going on with me..  But when I saw my gastroo dr.  ( who I rarely see)....he knew what it was immediately..   I think back to the days when I could eat just about anything.... :>))   These days, Im grateful when I have a slice of tomato, and have no " reaction"..   Good luck to all my ostomate pals....    Happy eating.    (  I had tomato sauce yesterday....with no reaction.   It's been months!!!   Marsha

Sun Aug 15, 2021 2:47 pm

 

  Immarsh wrote:  

Hi Noodle, I have my ileostomy since I was a teen ( I'm Marsha)  as a result of UC...   That's over 50 years...   Once I had the surgery,   I was able to eat just about everything....but was " cautious" with raw, and heavily fibered foods...  sosme  nuts were ok.... raw carrots no....lettuce fine,   cabbage not so much ( some cole slaw ok....it marinates).    As an adult I loved to cook, and have to admit, I didn't always eat healthy....loved pasta...chinese food...and all the other heavily carbed foods....not healthy.   Then I spent 2 weeks visitng my vegan son, and his family, and ate what I could of their very healthy diet ( ommitting what I knew I coudn't eat)  I lost 10 pounds, and  got an " education"..I came home and started to change the way I was eating....using less fats healthier choices...  meatless meals....  using  the dietary guidlines that worked for me...   It was challenging, and lasted about 3 months...   The lasting effects were.....learning that preparing meals/ cooking in general,   is using the ingredients yo want or need to use, in a healthier way...   Read " vegan recipes",  use or discard...what you know you can't digest...  Ex..  I  made   Asian flavored ground turkey/ lettuce wraps.....but ommmitted the nuts ( which I can no longer have )  and crunchy raw ingredients....and substituted cooked ingredients instead..    It was a delicious mixture...  and if you can't eat lettuce,   you can substitute a low cal. wrap..   Lose the fear, gain the confidence, to experiment....work with varying your spices...to change the taste of the same " old " basics....   It can be fun, if you like to cook,  or you can feel " deprived" and make yourself sad... ( that's what use to happen to me).   These days are a real challenge for me.  I delveloped another " gastric condition"...similar to IBS, but since I have no  large intestine, I have  issues with dehydration,  and " the runs"..   not good.   So basically....I'm off all healthy foods....Raw fruits and veggies...no artificial sugars., or real sugars ( I'm diabetic as well)  can use onion and garlic ( flavors) but not eat the real thing...no lemon or lime (   I was guzzling crystle light ...)   So " healthy" meals now...is more of a challenge.   Chicken & baked potato?  oatmeal, proteins...   ( It's called the fodmap diet).    It's not " forever"   but I have to carefully test....each type of food...   Just because I can eat it one day, doesn't mean it will sit right the next..   If any readers out there are having excess gas or bloating...... ( my pouch can fill with air in an hour or less)...   look into t he diet...    It's not an easy solution....but it works.   Most of my doctors had no idea what was going on with me..  But when I saw my gastroo dr.  ( who I rarely see)....he knew what it was immediately..   I think back to the days when I could eat just about anything.... :>))   These days, Im grateful when I have a slice of tomato, and have no " reaction"..   Good luck to all my ostomate pals....    Happy eating.    (  I had tomato sauce yesterday....with no reaction.   It's been months!!!   Marsha

 



 

Mon Aug 16, 2021 2:45 am

 

  Immarsh wrote:  

Hi Noodle, I have my ileostomy since I was a teen ( I'm Marsha)  as a result of UC...   That's over 50 years...   Once I had the surgery,   I was able to eat just about everything....but was " cautious" with raw, and heavily fibered foods...  sosme  nuts were ok.... raw carrots no....lettuce fine,   cabbage not so much ( some cole slaw ok....it marinates).    As an adult I loved to cook, and have to admit, I didn't always eat healthy....loved pasta...chinese food...and all the other heavily carbed foods....not healthy.   Then I spent 2 weeks visitng my vegan son, and his family, and ate what I could of their very healthy diet ( ommitting what I knew I coudn't eat)  I lost 10 pounds, and  got an " education"..I came home and started to change the way I was eating....using less fats healthier choices...  meatless meals....  using  the dietary guidlines that worked for me...   It was challenging, and lasted about 3 months...   The lasting effects were.....learning that preparing meals/ cooking in general,   is using the ingredients yo want or need to use, in a healthier way...   Read " vegan recipes",  use or discard...what you know you can't digest...  Ex..  I  made   Asian flavored ground turkey/ lettuce wraps.....but ommmitted the nuts ( which I can no longer have )  and crunchy raw ingredients....and substituted cooked ingredients instead..    It was a delicious mixture...  and if you can't eat lettuce,   you can substitute a low cal. wrap..   Lose the fear, gain the confidence, to experiment....work with varying your spices...to change the taste of the same " old " basics....   It can be fun, if you like to cook,  or you can feel " deprived" and make yourself sad... ( that's what use to happen to me).   These days are a real challenge for me.  I delveloped another " gastric condition"...similar to IBS, but since I have no  large intestine, I have  issues with dehydration,  and " the runs"..   not good.   So basically....I'm off all healthy foods....Raw fruits and veggies...no artificial sugars., or real sugars ( I'm diabetic as well)  can use onion and garlic ( flavors) but not eat the real thing...no lemon or lime (   I was guzzling crystle light ...)   So " healthy" meals now...is more of a challenge.   Chicken & baked potato?  oatmeal, proteins...   ( It's called the fodmap diet).    It's not " forever"   but I have to carefully test....each type of food...   Just because I can eat it one day, doesn't mean it will sit right the next..   If any readers out there are having excess gas or bloating...... ( my pouch can fill with air in an hour or less)...   look into t he diet...    It's not an easy solution....but it works.   Most of my doctors had no idea what was going on with me..  But when I saw my gastroo dr.  ( who I rarely see)....he knew what it was immediately..   I think back to the days when I could eat just about anything.... :>))   These days, Im grateful when I have a slice of tomato, and have no " reaction"..   Good luck to all my ostomate pals....    Happy eating.    (  I had tomato sauce yesterday....with no reaction.   It's been months!!!   Marsha

 



Thank you so much for all this info! I've actually never tried lettuce because I've just been too nervous. I do badly miss a good salad though haha Usually if I do happen to have something on our "no no" list (like maybe corn) I do regret it, as it causes a leak. I so wish we could just eat whatever we desired. 

Mon Aug 16, 2021 5:30 pm

 

  Padfoot wrote:  

Hi Noodle,

 

Try the veganostomy.ca site. It isn't just for vegans, but there are lots of recipes on that site , developed by ostomates, for ostomates. 

Laurie

 



Chew your food really well. Use a mini chopper if necessary. Small frequent meals.   Consult with a nutritionist if you can. I avoid stingy fiber or meat,  like pulled anything.  Try small amounts and see if you tolerate. I had sushi last night. Cooked cabbage salad with grilled chicken for dinner.  

Tue Aug 17, 2021 4:56 am

 

  Steven C. wrote:  

 

 

Chew your food really well. Use a mini chopper if necessary. Small frequent meals.   Consult with a nutritionist if you can. I avoid stingy fiber or meat,  like pulled anything.  Try small amounts and see if you tolerate. I had sushi last night. Cooked cabbage salad with grilled chicken for dinner.  

 



Thank you Steven. May i ask ... what does the meat do to you, why do you avoid it? I've seen others mention stringy meat as well, and I'm wondering if maybe I've had issues with it and just assumed it was something else I ate. Also,  cabbage?? Well, i have had Cole slaw in small doses, and I've been alright with it, but it did scare me haha I do love sushi, without sesame seeds please 😋

Tue Aug 17, 2021 4:08 pm

 




  Noodle19 wrote:  

 

 

Thank you Steven. May i ask ... what does the meat do to you, why do you avoid it? I've seen others mention stringy meat as well, and I'm wondering if maybe I've had issues with it and just assumed it was something else I ate. Also,  cabbage?? Well, i have had Cole slaw in small doses, and I've been alright with it, but it did scare me haha I do love sushi, without sesame seeds please 😋

 



A friend gave me some pulled pork. It was difficult to chew, and I developed an obstruction  and ended up in the ER with pain and nausea. It did resolve but was a very miserable experience.

Tue Aug 17, 2021 4:14 pm

Hi Noodle,  I see you have already gotten lots of good advice here, and on the VO site.  I would just add that what I have discovered as an ileostomate, is that I can pretty much eat what I want, BUT, eating slowly and chewing food really really well, and drinking lots of water or other fluids to wash it all down, is really important for me anyway.  So, some of these things you think you can't eat, may well be possible for you, give them another try, cautiously, slowly, small amounts at a time.  As far as keeping it healthy, there is no reason you can't eat lots of fruits and vegetables.  If you are a meat eater, think more about the way you are preparing the food, ie, baked chicken instead of deep fried.  Good fats, olive, avocado, grapeseed oil, etc. are fine.  Sugar is the real demon and a good thing to limit as much as possible, as hard as that is with nearly everything having added sugar these days.  In short, a healthy diet is a healthy diet, whether you are an ostomate or not.  If you are trying a new diet and feel like you are depriving yourself, you most likely won't stick to it, so reward yourself occasionally.  Eat that donut or whatever other naughty food does it for you, and don't feel guilty. I wasn't clear from your post whether weight-loss was part of your plan, but if it's not, disregard this last bit! Good luck!

 

Terry

Wed Aug 18, 2021 2:33 am

 

  delgrl525 wrote:  

Hi Noodle,  I see you have already gotten lots of good advice here, and on the VO site.  I would just add that what I have discovered as an ileostomate, is that I can pretty much eat what I want, BUT, eating slowly and chewing food really really well, and drinking lots of water or other fluids to wash it all down, is really important for me anyway.  So, some of these things you think you can't eat, may well be possible for you, give them another try, cautiously, slowly, small amounts at a time.  As far as keeping it healthy, there is no reason you can't eat lots of fruits and vegetables.  If you are a meat eater, think more about the way you are preparing the food, ie, baked chicken instead of deep fried.  Good fats, olive, avocado, grapeseed oil, etc. are fine.  Sugar is the real demon and a good thing to limit as much as possible, as hard as that is with nearly everything having added sugar these days.  In short, a healthy diet is a healthy diet, whether you are an ostomate or not.  If you are trying a new diet and feel like you are depriving yourself, you most likely won't stick to it, so reward yourself occasionally.  Eat that donut or whatever other naughty food does it for you, and don't feel guilty. I wasn't clear from your post whether weight-loss was part of your plan, but if it's not, disregard this last bit! Good luck!

 

Terry

 



*as i sit here, eating a donut * haha thank you delgrl, I'm going to broaden my horizon. I'm amazed by the amount of help I've received in both of the forums, I'm so greatful! I would like to lose weight, if possible.  I gained after getting my ileostomy, now that I'm not living on saltines haha I've lost a little since working at Amazon, but I definitely could afford to lose more. Sorry, i babble 🤐 

Wed Aug 18, 2021 4:22 pm

 

  Noodle19 wrote:  

 

 

*as i sit here, eating a donut * haha thank you delgrl, I'm going to broaden my horizon. I'm amazed by the amount of help I've received in both of the forums, I'm so greatful! I would like to lose weight, if possible.  I gained after getting my ileostomy, now that I'm not living on saltines haha I've lost a little since working at Amazon, but I definitely could afford to lose more. Sorry, i babble 🤐 

 



Hi Noodle,  Well, let me tell you something I found out the hard way.  I remember when the prevailing advice for weight loss was to cut down on fat.  Sugar was mentioned, but fat seemed to be the biggest culprit that needed to be avoided.  Food manufacturers all came out with their own versions of their products made "low fat".  We are learning now that sugar is the real culprit and fat really isn't such a bad thing.  After my ileostomy surgery, I was encouraged, even by the nurses and my doctor, to up my sugar intake, as my output wasn't what it should be and it's known that sugar will stimulate the bowel to work.  I was adding sugar to the water I drink every day, plus drinking fruit juice, which is very high in sugar (even the no-added sugar stuff).  It made me feel really crappy, but what really bugged me is that I started gaining weight.  I hadn't gained weight for years and it wasn't welcome.  I talked to my doctor about it and he sent me for blood work that showed my liver enzymes were really elevated, and this was just from sugar!  He said you can get non-alcoholic fatty liver disease just from a high sugar diet.  Who knew!?  I stopped the sugar immediately and found that as long as I drink lots of water (with a little salt), my output is just fine.  The weight came off very easily and quickly.  The other thing is that my diet is anything but "low fat".  I eat lots of fat, just good fat.  I am very generous with the olive oil, eat avocados and nuts which are really high in fat.  So, bottom line, Noodle, if you want to lose weight, lose the sugar, not the fat.  You will also be a lot healthier! Talk about babbling!  Good luck on your journey!

 

Terry

Wed Aug 18, 2021 5:05 pm

Hi Terry.....great post!    There are so m any different diet suggestions out there, thaat we forget how to follow basic nutritional advice..   Your's is the voice of reason....   Thanks..   Marsha

Sat Aug 28, 2021 12:40 am

Try smoothies fruit or vegetable. Good for breakfast, lunch and dinner. Lots of recipes on the net.

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