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Colostomy and tiredness

Tue Aug 02, 2022 12:23 pm
"MeetAnOstoMate is the best website for people with an Ostomy. So much understanding. Everyone should join."

Hello. New to the forum and new to colostomy living. I had lifesaving colostomy surgery March 2022 with 18 days in hospital.

 I woke up this morning with extreme fatigue. I’ve been tired off and on since surgery. It seems like about the time I start feeling like I’m getting my strength back, I will have what I call “a fatigue day”. Is this normal to kind of bounce back and forth?

I have read recuperating can take 1 week for each day spent in the hospital. 18 weeks for me. I still have a few more weeks to go. 

Today caught me off guard. I was ok yesterday. Haven’t been napping as much hoping it would help me sleep better at night.

Passing good into the bag. Making sure I am eating/drinking. No pain, just tired. 

Would love some words of advice/encouragement.

None of my family really understands the colostomy and recovery time and think I should be back to normal and out and about every day.

 Thank you in advance.

Tue Aug 02, 2022 1:04 pm

You do you on recovery time. Everyone is different in that aspect. I don’t really have fatigue days anymore, surgery March of ‘21, but I have days where I know I pushed myself a little too far. A week per day in the hospital? That’s just gibberish cause we all have different circumstances that we go through to get this sexy accessory we have in common.  Good fluids, good diet, great desserts,  build yourself back up, and enjoy each day that your given. 

MeetAnOstoMate - 27,789 members
Tue Aug 02, 2022 1:38 pm

Hello bsrobert.

 Thanks for posting about tiredness as it is a subject that comes up from time to time and needs addressing regularly. 

It is perfectly normal to feel tiredness or fatigue after an operation. However, there are many other possible causes of fatigue or tiredness that are not necessarily directly related to having an ostomy. things like blood sugar levels, dehydration, salts, electrolytes, etc, etc.

It is as  well to check out as many avenues as possible as there might be a simple solution to you tiredness. 

In my own case I found that there were two different causes for the worst of my tiredness 1) sleep apnoea which made me generally tired during waking hours and: 2) very low blood pressure which occasionally caused immense and immediate fatigue, so bad that I had to stop whatever I was doing to lie down for a few minutes.

My GP at the time simply dismissed it as overwork, but once I had some checks done I found solutions. 

Meanwhile, I did write some rhymes about this aspect so I'll share one with you now !

Best wishes

Bill

TIREDNESS AND ILLNESSES.

I think UC, Crohn’s and IBS
will all link up with tiredness.
Also there’s some affirmation
of this with bowel inflammation.

If you lose blood through your poo
when you sit down upon the loo
then you should take some extra care
and watch for other symptoms there.

If lots of blood runs from your bum
anaemia can sometimes come.
In much research it has transpired
that this can make you very tired.

With such diseases comes much pain
which causes energy to drain.
And if it’s with you constantly 
you will tire consequently.

Chronic illness has some renown
for really dragging people down.
So if you don’t feel very well
within fatigue you may well dwell.

When your diet is not quite right
then you might lose your appetite,
and if you go right off your food
it’s likely you will be subdued. 

Illness can create the stress
to put you under great distress.
Then there is the loss of sleep 
where tiredness is what you reap.

These chronic illnesses aren’t kind,
they stress the body and the mind.
Because they are so difficult
tiredness is one result.

                                    B. Withers 2013

(In My Ostomy World. Book 2 p26)



Last edited by Bill on Mon Aug 08, 2022 12:56 pm; edited 1 time in total
Tue Aug 02, 2022 1:45 pm


Bill wrote:

Hello bsrobert.

 Thanks for posting about tiredness as it is a subject that comes up from time to time and needs addressing regularly. 

It is perfectly normal to feel tiredness or fatigue after...

Thank you. About 2 hours ago I asked my dr to review my hospital records regarding sleep apnea. I vaguely recall 2 different nurses telling me that I have sleep apnea.  

Praying it is something simple or just needing more time. 
Today kicked my anxiety into a higher gear, which doesn’t help with the fatigue either.

Tue Aug 02, 2022 2:01 pm


Bill wrote:

Hello bsrobert.

 Thanks for posting about tiredness as it is a subject that comes up from time to time and needs addressing regularly. 

It is perfectly normal to feel tiredness or fatigue after...

And one might add a “Silent UTI” to your list

no real symptoms but happens in older adults causing many issues - one being tiredness- seems as tho the Docs could easily check this out with a urine test before the  many long, expensive tests.  Reminds me of a Charlie Brown cartoon

Tue Aug 02, 2022 4:11 pm

Hello bsrobert, I had my surgery March 2020 and I still have 'tired' days. It could be from so many things... surgery, chemo, radiation, menopause, heat & humidity or just being silly and binge watching Grey's Anatomy on a work night. LOL You are in the best place for friendly helpful folks and great advice. 🌻

Wed Aug 03, 2022 7:49 am

Hi Bsrobert and welcome to MAO, maybe have some lab work done to see something is on the low side, my wife has hypothyroidism which caused bouts of fatigue, as for me and my ilieo. my pcp told me to take b-12 which seems to help. 

Wed Aug 03, 2022 2:38 pm


Justbreathe wrote:

And one might add a “Silent UTI” to your list

no real symptoms but happens in older adults causing many issues - one being tiredness- seems as tho the Docs could easily check this out with a u...

😂

Fri Aug 05, 2022 7:11 pm

10 months since my surgery it started out as multiple days a week and worked its way down to about one per week and then just had a failed reversal and I'm back to a couple days a week. For me I agree with Alex in that it's gotta be more unique on a case by case basis and these are just my results. Here's to hoping we're both back 100% soon. Take care!

-Justin

Mon Aug 08, 2022 2:12 pm

I still have fatigue days, and I am years and years out from my last surgery. I suspect some of it has to do with when I get “blocked up.” If things aren’t moving as well it seems to contribute to my tiredness. It sounds like you aren’t having that problem but your surgery wasn’t very long ago so just give yourself lots of time to rest and recover. I don’t think people truly understand what an immense stress surgery and ostomies are on our bodies. I had that problem with my last relationship, he seemed to think I should be back to normal. But I know my body well and I know it will never work as efficiently. I just need more rest now and that is my new normal. I hope your loved ones can accept the changes you are going through and cut you more slack. 

Mon Aug 08, 2022 3:30 pm

I had my colostomy surgery at the same time as you.  I fight fatigue as well.  I eat well, I’m hydrated, so it’s not those.  According to my ostomy nurse it can take up to 6 months for your body to completely heal as I had the Barbie butt done too but either way it’s a big change 

Mon Aug 08, 2022 10:40 pm


Dagger wrote:

I still have fatigue days, and I am years and years out from my last surgery. I suspect some of it has to do with when I get “blocked up.” If things aren’t moving as well it seems to contribu...

I am having severe fatigue  every day and it make me feel scared at times not knowing what going on in my body.And I am stressing myself to much having anxiety o my there is never and end is always something to be concerned about. Scary ☹😦

Sat Sep 10, 2022 6:39 am

Hi there, I just posted to the forum this morning on hemicolectomy. I didnt fully understand what was gone from me, what was resting of my body and how much was left left of me?  I too go through a lot of fatigue days. Yesterday was such a day..I even feel nauseous and a tiny bit anxious because I don't understand the extreme tiredness and nausea.🤦🏼‍♀️ People on here seem to be well informed and although I don't post often there are some great answers to questions posted by others that help me learn more. I had 2 emergency ops within 10 days  of each other. I am 13 weeks post the last op. Thanks for posting your question, I don't feel as alone now, especially since your 2 months further along the recovery road!

Caroline 🙌🙋🏼‍♀️

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