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EATING DISORDER打

Tue Aug 02, 2022 5:02 pm
"MeetAnOstoMate is the best website for people with an Ostomy. So much understanding. Everyone should join."

Hi to all the ostomates who are tring to find thier new 'normal'.

I had a total Colectomy with an end Ileostomy June 17th. Since surgery my eating is almost every two hours. Is this normal with the colon gone. I had a good appetite before, but now I must say it's an eating disorder.

My colon was removed due to a very low transit and non- functioning rectum. Finally I found a wonder woman surgeon who heard me.

Adjusting, still have a lot of anxiety if I'm away and my pouch fills up-- I take pills for poop odor and carry poop-potpouri-- but still spaz a bit to find the perfect secluded pot嗯恬五

Any tips I'd appreciate..

Blessings, Ging


_________________
Registered Radiology Tech. 46yrs.
Breast Imaging specialists for past 32 years.

For verification Google search ARRT- login.
ARRT ID # 103761.
My name has recently changed back to:
Ginger Lee Bull.
Tue Aug 02, 2022 7:00 pm

I wish I had a tip for you. After my ileostomy 2 years ago I lost a lot of weight - only in the last month I have started to put on some pounds and I feel hungry all the time. If back to normal means having to watch calorie intake and healthy weight then I guess I am now back to normal. I do have one tip -

MeetAnOstoMate - 27,789 members
Wed Aug 03, 2022 2:46 am

Hi Ging,

Welcome to the club! You're fine.........no eating disorder! You're body is adjusting to the change, and appetite is one of those things that adjusts as well. Since your colon absorbed most of the water in your stool make sure you stay hydrated. There's been lots of discussions on here about that topic. Your appetite will work itself out as what's left of your bowel adjusts to it's 'new normal'......and this takes years.

;O)

bob

Wed Aug 03, 2022 5:52 am


w30bob wrote:

Hi Ging,

Welcome to the club! You're fine.........no eating disorder! You're body is adjusting to the change, and appetite is one of those things that adjusts as well. Since your colon ab...

Thank you soo much for your reply. I will be patient.

Blessings, Ging


_________________
Registered Radiology Tech. 46yrs.
Breast Imaging specialists for past 32 years.

For verification Google search ARRT- login.
ARRT ID # 103761.
My name has recently changed back to:
Ginger Lee Bull.
Wed Aug 03, 2022 7:26 am

welcome and I'm ileostomy for a few months eating every few hours is not only normal but necessary, we need to eat every 4 to 5 jrs....I lost over 50 pounds after operand now slowly gaining ounces and or a pound every 2 weeks....your weight will depend on ur output and how fast you process....

I'm still at the point I eat feel full 30 minutes later can eat or snack again 不

you got this you will balance it out just keep at it you are normal

Tracy

Wed Aug 03, 2022 3:01 pm

Hi Ginger, Welcome to the site. I agree with the advice given so far. Just want to say it's nice to have another ileostomate on board, who came by your surgery for the same reason I did! Very slow transit time and basically a non-functioning colon. There are a few of us here. I used to think I was the only one on earth with my problem. My ileostomy has improved my quality of life so much, and I'm thankful for it every day. I hope you find the same to be true for you. You are a newbie and there will be bumps in the road as you make the adjustments, but you'll get there. And there is a wealth of support and information here, and some very lovely people, so take advantage!

Cheers,

Terry

Wed Aug 03, 2022 10:39 pm


delgrl525 wrote:

Hi Ginger, Welcome to the site. I agree with the advice given so far. Just want to say it's nice to have another ileostomate on board, who came by your surgery for the same reason I did! Ve...

Thank you so much Terry for your feedback- it shows you care a bunch. Nice to know we had similar issues.. so much worse the last 10 yrs..

I'm sooo thankful I found someone who truly listened.

Keep in touch,

Blessings, Ginger


_________________
Registered Radiology Tech. 46yrs.
Breast Imaging specialists for past 32 years.

For verification Google search ARRT- login.
ARRT ID # 103761.
My name has recently changed back to:
Ginger Lee Bull.
Sun Aug 07, 2022 3:10 pm

I have also had a total colectomy almost 50 yrs. ago. I am also always hungry. I try not to eat in between meals because I am overweight. I don't understand this because within 1/2 hour of eating, it is elimated. I still have my whole small intestine and they say that the small intestine is what absorbs the food and nutrients. But still don't understand why I am at least 20LBs overweight.

Sun Aug 07, 2022 5:19 pm

W elc ome to t he " proverbial" club... Had an ileostomy first and 4 years later, got the drs and my parents to agree to pulling out the diseased rectal stump... ( had ulcerative colitis)... ADjusting t o the ostomy takes time, mentally and physically...I w as 15 at the tim e, and when the doctor said " take it slowly" I didn't listen.. The first thing I had was pizza... But I did have to take note of how different foods affected the workin g of my ostomy.. The more fiber, the more churning....and we don't have t he colon to store waste, or absorb water.. Because everyone is different..... you need to assess what works for you.. On an empty stomach....som e foods go through me in 2-4 hours... With more fiber....it takes longer, and the output is " bulkier"... I dehydrate easily, so I drink a lot of water, especially in the summer.. The color of your urine is a clue as to how much you need to drin k... Pale yellow / clear....is best.. Too dark is a clue that y ou need more fluid....water, not juice, coffee, soda..etc.. Try different foods...... to see what works a nd what doesn't. I use to b e able to eat corn on the cob....and now, not so much.... same with raw veggies ( cabbage, celery etc). It's an adv enture......but it's certain ly better than living with disease... And I've always been able to find a bathroom when needed.. Fast food places are t he best... / gas stations the worst ( dirty) But I've also " dumped" in the woods at the side of a countnry road... Best of luck to you... Marsha..

Sun Aug 07, 2022 9:10 pm


Immarsh wrote:

W elc ome to t he " proverbial" club... Had an ileostomy first and 4 years later, got the drs and my parents to agree to pulling out the diseased rectal stump... ( had ulcerative coliti...

As a side note, Immarsh, and if you're ever visiting New York City, the cleanest public facilities I've ever encountered are onboard The USS Intrepid...

Mon Aug 08, 2022 10:25 am

I have a colostomy (resected rectum, sigmoid, and some ascending). Post surgical chemo lead to a necrotic bowel incident where they resected 40 cm of my small intestine (and I almost died) so my bowel acts a bit like an ileostomy. After my last surgery, I found it difficult to get enough absorption which lead to poor food choices at times (over carbing). A friend gave me a bag of Ka'Chava (its a powered vegetarian meal replacement) which I started using a little at first. Over time I increased my use to the point I have it for breakfast at least five days a week. Another important item is to chew your food much more thoroughly to aid in digestion and absorption. Focus on high-density nutritional foods (organ meats are great), and your impulse eating should subside over time. Hang in there and good luck.

Mon Aug 08, 2022 10:33 am

I have had my ileostomy for almost 40 years. My intake passes within 4 hours and I am hungry most of the time. Currently I am over weight. I have to do extreme cardio to stay thin and can't keep up that pace all the time. I cut out sugar, juice, soda nothing seems to help. Can't eat to much protein or raw vegetables. I have developed arthritis related to the ulcerative colitis which causes chronic fatigue. I wish someone had an answer too.

Mon Aug 08, 2022 12:31 pm


Justbreathe wrote:

I wish I had a tip for you. After my ileostomy 2 years ago I lost a lot of weight - only in the last month I have started to put on some pounds and I feel hungry all the time. If back to nor...

Well thats wonderful, good for you! Its been 2 years for me and I just cant gain any weight! 必 Can you let me know what you can eat and drink that helps you gain weight? Im always hungry and probably eat too much. Thank you, greatly appreciated!滕

Mon Aug 08, 2022 1:26 pm


Trigger wrote:

Well thats wonderful, good for you! Its been 2 years for me and I just cant gain any weight! 必 Can you let me know what you can eat and drink that helps you gain weight? Im always hu...

Maybe not so wonderful匈m not very tall so cannot afford to put on too many pounds. For the last year I have been eating anything I want (except lettuce and corn) I think chocolate and the fact that I have started drinking my favorite adult beverage at happy hour (Captain Morgan and Diet Coke) are the main reasons for my weight gain -

I do have an almond milk, 1/2 banana, and organic protein powder smoothie every morning

Thu Aug 25, 2022 5:12 pm


Homie With A Stomie NS wrote:

welcome and I'm ileostomy for a few months eating every few hours is not only normal but necessary, we need to eat every 4 to 5 jrs....I lost over 50 pounds after operand now slowly gaining ounces ...

Thank you Tracie...just today I realize HOW TO READ REPLIES戊


_________________
Registered Radiology Tech. 46yrs.
Breast Imaging specialists for past 32 years.

For verification Google search ARRT- login.
ARRT ID # 103761.
My name has recently changed back to:
Ginger Lee Bull.
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