Anyone on here a T1D with an ileostomy? How do you approach diet for both?
Barrett
Oct 06, 2022 6:56 pm
Rose Bud 🌹
Oct 07, 2022 5:20 am
I'm T2. I know it's a little different, but I had a hard time because I wasn't a diabetic before I got my ostomy... long story. All I was told was to eat what your stomach can tolerate... which was extremely frustrating from my GP and dietician. If neither of them can help you, I'd try small things at first, then add things into your diet. What may work for one may not work for someone else. Like I've heard and read, rice and toast thicken output, but as you know, we must be careful with carbs, and unfortunately, even when I am, they run through me like water. Don't give up hope; it eventually will come, and don't be discouraged if it's mostly watery until things get figured out. That's unfortunately one of the downsides of an ileostomy, but like I said, everyone is different. Hope this helps some.
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StPetie
Oct 09, 2022 12:20 am
Rose Bud has it right, I believe. Adding things one at a time and watching the effects is really your only choice. My GI guy said, "Whatever you do, eat A not B." My endocrinologist said, "Whatever you do, eat B not A." So you're kind of on your own and have to find what works for you. I prioritize glucose control and have learned what works for me as far as the stoma is concerned. But you and I have very different GI issues, so our tolerances will likely be different. Be patient, pay attention, and you'll find a diet that works for you and that you enjoy. It's a process, but you'll get there.
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daniel902
May 18, 2023 5:09 am
I'm not a T1D with an ileostomy myself, but I can understand how managing both conditions could be challenging.
Some tips for managing both conditions include:
Eating small, frequent meals throughout the day to avoid blood sugar spikes and ease digestion.
Choosing low-fiber, easily digestible foods such as cooked vegetables, lean protein, and whole grains.
Monitoring blood sugar levels closely and adjusting insulin doses as needed.
Staying hydrated by drinking plenty of water and avoiding sugary drinks.
Working with a registered dietitian or healthcare professional to develop a personalized meal plan.