I made my first post a few days ago with my story and some questions but it was very long but I have one question I wondered if anyone knew what this pain could be.
I’ve had my ileostomy since December 6th 2021. I had 11 surgeries in 11 weeks.
A few months ago I started getting this stabbing pain to the right of my stoma about an inch away.
It was a very minor pain before so I didn’t take much notice and thought it could just be healing.
However over time it got a lot worse. I feel it most days and some days are manageable and others it really hurts.
I’m under 2 surgeons at 2 hospitals and was told to contact the one doing the investigations. It was September when I contacted him and he left me a voicemail to say the pain is probably “a bulge in the muscle and not to worry unless I get a blockage”
He hasn’t examined me.
I spoke to my stoma nurse about this after this voicemail and she said it sounds like he’s saying it’s a parastomal hernia but neither of us could see a bulge.
I’ve just tried to get on with it because the surgeon didn’t seem too concerned but some days are worse than others. I didn’t think about seeking any other medical attention because my surgeon didn’t seem concerned.
A few days ago I had a bad day with the pain, it was also burning. I changed my bag incase I had a breach which I have often and there was no problems with my skin. My stoma nurse came out again yesterday and can’t see any problem with my skin and can’t see a reason for the pain so think it’s internal.
She has said if it gets bad again to go to a&e if it’s before I speak to my surgeon again. I have an appointment with that surgeon on 7th December but it’s only a phone call appointment so again I won’t be examined.
I’m very worried about going to a&e because of trauma from my 11 week and 5 day hospital stay and because I was sent away from a&e just over a week before my bowel perforation because I just had sickness and diarrhoea so worry I’ll be sent away again.
Some days I feel like it has a general ache from the area.
But the worst pain is the stabbing. It feels like someone is literally stabbing me with a knife repeatedly.
I’ve kept track of what I’ve been eating and can’t find any pattern nor with any pattern of any physical activity I have done.
Does anyone have any idea what this could be?