I am new to the land of ostomy and I feel the ostomy nurses don't share as much as I can read on here. So I have a few questions...
Do I need to support the bag? i.e. Do I need to wear a belt or is it okay to let the bag hang freely? My stoma is situated such that I can wear my regular undergarments, however, I notice that there are garments which hold the bag. Is this necessary?
Does the stoma have to be protected? I was only told that excessive rubbing would not be good.
I was given a pamphlet on foods which produce gas, foods to avoid, etc. But the nurses said to try anything. I am a bit scared to get a blockage and a bit scared that I will not get a balanced diet. So far I am doing okay but I have asked for a referral to a dietician. How do you try anything but save yourself from a blockage?
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Every morning when I enjoy my big cup of coffee I scroll through this site and this warm feeling just overwhelms me.
I never post anything (too shy and it feels like I don’t have anything of interest to share tbh) but I sure read a lot of posts from you guys and they are so informative, supportive encouraging and so so full of love and a big dose of humor.
I feel like part of the best family in the world (even though I am just sitting quietly in the corner lol).
I just wanted to share that feeling and say thanks to all of you for being so wonderful.
And also, please keep some fingers crossed for me this week. I have my blood test on Thursday, checking my CA 125 levels. Ovarian cancer reoccurrence fear unlocked again. I hate it!
Lots of love from Sweden
Learn more about ostomy accessories, and when to use them.
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