Hey All,
Just got back from NYC, where I underwent an experimental operation. The doctors from Boston, Dartmouth, and many others, after a year of trying, were unable to treat my severe ileostomy output, which was caused by a simple surgery gone wrong. I was able to find a doctor who was willing to take the risk along with myself to try something new... I knew my risk going in; however, I knew if it worked, I'd not only be helping myself but others like me who were told, "Nothing more we can do." The operation was a success, and I feel GREAT! They reversed the ileostomy to a colostomy, which the other doctors said could NOT be done as the colon was not working...
butterfly9760
Mar 27, 2010 7:02 pm
banshie3by5
Mar 27, 2010 7:28 pm
Did diet affect your output? I joke that I have a Sigmoid Ileostomy. Technically it's a sigmoid colostomy and I don't even have an ileum, nor a couple of other chunks. When I fed it like a cole, all I got was tons of liquid. (I can lose 9 pounds in 8 hours from fluid loss.) When I started feeding it like an ileo, things slowed way down. I came across the feeding/nutritional info in a British Nursing Journal when researching a paper for class.
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ConnMan
I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!