Experimental Surgery Success: From Ileostomy to Colostomy

Replies
3
Views
660
butterfly9760
Mar 27, 2010 7:02 pm

Hey All,
Just got back from NYC, where I underwent an experimental operation. The doctors from Boston, Dartmouth, and many others, after a year of trying, were unable to treat my severe ileostomy output, which was caused by a simple surgery gone wrong. I was able to find a doctor who was willing to take the risk along with myself to try something new... I knew my risk going in; however, I knew if it worked, I'd not only be helping myself but others like me who were told, "Nothing more we can do." The operation was a success, and I feel GREAT! They reversed the ileostomy to a colostomy, which the other doctors said could NOT be done as the colon was not working...

banshie3by5
Mar 27, 2010 7:21 pm
Wow...way cool! Thanks for being a pioneer in this field!
banshie3by5
Mar 27, 2010 7:28 pm

Did diet affect your output? I joke that I have a Sigmoid Ileostomy. Technically it's a sigmoid colostomy and I don't even have an ileum, nor a couple of other chunks. When I fed it like a cole, all I got was tons of liquid. (I can lose 9 pounds in 8 hours from fluid loss.) When I started feeding it like an ileo, things slowed way down. I came across the feeding/nutritional info in a British Nursing Journal when researching a paper for class.

Posted by: Jonny

Thanks for the welcome, guys. I have to admit this website does seem very friendly and helpful.

I will definitely log into chat as soon as I can and see who is around. Looking forward to meeting some like-minded people! :)

lottagelady
Mar 27, 2010 8:16 pm
That is great, so pleased it has worked for you, well done! Rach xx