Hello Fellow Ostomates!
I've had a colostomy since '98 and am thinking of getting it surgically reversed and changed to something called an ACE procedure. I'm wondering if anyone out there has ever heard of it or had one themselves. Wondering what the pros and cons of it might be as compared to just keeping the colostomy?
Thanks in advance,
Sophia
smh9288
May 10, 2010 7:38 pm
Sevensins
Oct 21, 2011 11:09 pm
i went the opposite way, started with an ace and went to a colostomy, feel free to message me if this is still relevant.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty