See my latest post in 'Social Discussions' :) xoxo
WOUNDED DOE
Aug 04, 2012 6:32 pm
weewee
Aug 06, 2012 5:21 am
Everyone needs a place to fit, and a trip to Neverland would be fun. Sit around a campfire, roasting marshmallows and making s'mores. Everyone lets their bags out in the air and relaxes until someone blows out, and the fart game is on.
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Posted by: w30bob
Hi gang,
I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?
I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?
Thanks,
Bob
sony34
Aug 08, 2012 4:27 pm
I would come there...I don't care where it is...that would be like heaven. Love Love the idea
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LilyJ
Aug 09, 2012 8:34 pm
You don't say where you are located. I've had an ostomy for 40 years, so I don't know if this is good or bad. I have never wanted wearing a bag or having Crohn's to define who I am. On the flip side, there is always a feeling of safety and acceptance in numbers. My favorite thing is that you are an organic gardener, and living chemical-free would be wonderful. I am a Master Gardener and love growing and using herbs the most. Keep working on your idea. It's interesting to think about. Joyce
mitdad
Aug 13, 2012 1:41 am
A sanctuary or facility for socialization, counseling, information, and education, and a respite for a change of daily routine sounds great. Being with others of similar circumstances is always a comfort. Being an Ostomate for 50+ years and living alone as a widower for the past 3 is very lonely. I can see the benefit that a place like you describe would be very attractive as a getaway and needed change. Various activities could be planned. Barry
Living with Your Ostomy | Hollister
WOUNDED DOE
Nov 05, 2012 7:13 am
Thanks everyone.....I keep all these options and possibilities in my mind. I gave up on relationships; I have no brothers or sisters and no kids......so my friends are all I've got...sooo....I want to 'make a difference' even after I'm gone.....something useful to leave behind. xoxo .....somehow.