I have had an ileostomy for over a year now. Usually, the liquid is thin, but lately, it has been thicker and causing my seal to burst. I eat the same thing and don't understand what's going on. When my liquid comes through, it stings me. Does anyone have a clue what's going on?
cherylem
Aug 08, 2012 5:06 pm
weewee
Aug 08, 2012 8:10 pm
Your liquid is just like when you had the shits, and after a bit, it would burn your butt. It's really acidic stuff for breaking down the foods. You might want to try an old way to see what is going on. First, you eat one thing at a time to see how your body reacts to it. Then you will know what is good and what brings problems to your system.
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Posted by: Primeboy
Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!
I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.
On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!
Someone once wrote that our children are the letters we write to the future.
PB
mitdad
Aug 13, 2012 1:59 am
Hi Cheryl, there are times when your output varies even when you eat the same foods. Your bowel, after a year, may be more efficient in absorption, resulting in thicker output and increased pressure or pull on the seal you are using. Different seal types or pastes or a belt may add support. Feel free to communicate if you choose. Barry OTR/L
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