Struggling to Find Effective Ostomy Supplies

Replies
12
Views
810
kittybou
Dec 07, 2023 11:10 am

Are the products a lot the same for ostomy supplies? I can't seem to find anything that works very well with the supplies I am currently using. Very frustrating.

Past Member
Dec 07, 2023 12:41 pm

Hi there,

Your post question is a bit confusing. What are you trying to find?

kittybou
Dec 07, 2023 1:01 pm

So sorry! I keep getting supplies and samples from Hollister. Nothing is working. They asked me what size my stoma was, sent me convex barrier rings that are an inch too small, but I'm not supposed to stretch it more than half an inch.

Justbreathe

MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.

Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.

For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.

Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.

I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.

Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼

IGGIE
Dec 07, 2023 2:04 pm

G'day Kittybou, why are you guys wandering around in the dark? Go see your stoma nurse and she will sort things out for you. Regards, IGGIE

kittybou
Dec 07, 2023 2:29 pm

Thank you 🧑‍🎄😸

 

My Ostomy Journey: LeeAnne | Hollister

Play
AlexT
Dec 07, 2023 4:05 pm
Very helpful

Have you tried samples from other companies or other Hollister products? If what you currently use isn't working, you must try other things and not just deal with the misery all the time.

kittybou
Dec 07, 2023 6:10 pm

Thank you.

whackjob74
Dec 08, 2023 12:04 am
Very helpful

I was set up with Hollister in the hospital and also had issues and very little info. I called Convatec and Coloplast directly and spoke with them. They both sent me a bunch of samples to try, and I found a combo of brands/products that works great. The companies will send you samples of any product they have if you just ask. They will also follow up with you and make suggestions if the samples were not the right fit. It did take a bunch of trial and error with products to find what I like, but I'm sure you will be able to as well.

kittybou
Dec 08, 2023 12:11 am

That's what I needed to know! Thank you so very much! 😸🧑‍🎄☃️❄️

whackjob74
Dec 08, 2023 12:19 am
Very helpful

Crossing my fingers you find a good combo quickly!!

kittybou
Dec 08, 2023 1:04 am

I will, now that I know whom to contact. You have been very helpful.

Beachboy
Dec 09, 2023 2:50 am
Very helpful

Hello.  

You can do whatever you want with the barrier rings. I stretch the heck out of them. The trick is to warm the ring up before use. I leave the two plastic pull-off covers on. Then put the ring under my arm for a minute or two. Put on nitrile gloves. Pull off the plastic, cut through one side of the ring with scissors. Then squeeze and stretch the ring. I do this to the entire ring. Then, standing in front of a full-length mirror, test fit the ring around my oblong stoma. I start at the stoma bottom and work my way up the sides. You want the ends of the ring to meet at the top of your stoma. Make adjustments where a better fit is needed and at the ring ends at the stoma top. You would be surprised how much you can stretch a ring. Once the fit is good, I use my fingers (still wearing gloves) to gently push the ring against the peristomal skin so the ring sticks. I start at the stoma bottom and end at the top. Check in the mirror once more. Adjust the ring by gently pushing it with a finger.

Now I'm ready to put on the flange. I cut the hole larger. No need to get real close to stoma size. The ring fills the gap nicely. 

If you are getting leaks, next time you change out the flange, put a barrier ring around your stoma. Install the flange. Put another ring around your stoma, stuck to the flange. Now you have two rings providing sealing around your stoma.

I've used Convatec, Hollister, and Coloplast rings. I have not noticed much difference. But I have a colostomy with thick output, so I don't get bad leaks, and the output does not irritate my skin. Ileostomy and other types of ostomy will have many more challenges than I deal with.

 

bowsprit
Jan 30, 2024 6:18 pm

I wish that having a bag was the same as not having one, but unfortunately, it isn't. I latched onto that truth one evening when I was in an inebriated state, half asleep and half awake. Amazing how sometimes facts stare you straight in the face when you have had a few. So, for the men, at least, it is time to hone their other skills. Cyrano de Bergerac had a disability, an outsized schnoz, but that didn't prevent him from winning the heart of the lovely Roxane. Tragically, it came a bit too late for him. He developed what is now called Cyranosis, the state in which one falls in love with another only by the use of words. 'My heart always timidly hides itself behind my mind. I set out to bring down stars from the sky, then for fear of ridicule, I stop and pick little flowers of eloquence.' An example of some of the words contained in his letters. Apart from sharpening their other abilities, those involved in the search for a suitable mate could try to amass a large amount of cash. The green stuff comes in handy in any situation. Money talks, BS walks, they say. Best wishes.