I was having excruciating stomach pain, and a CT revealed that my intestines were being blocked because of the hernia that developed. They called my surgeon, and the surgeon said, “I guess it's reversal time.” They prepped me for the reversal, so unexpected and no time to plan for it. Today is the first day after surgery. She was able to do it laparoscopically, thank goodness, and didn't have to open me up. Surprisingly, so far, the pain is not as bad as the initial open surgery I had 8 months ago. I will document recovery on here in case it will help anyone else searching for reversal experiences. I had to have a colon resection due to diverticulitis with perforation and ended up with a colostomy during an ER visit. Today the plan is to remove the catheter and walk after every meal. I'm on a clear liquid diet. They made 3 incisions and closed up the stoma site. She said some docs leave it open, but she likes to close it up. That's actually where the most pain is right now. Hopefully, the bowels wake up when I get moving. Because of God, I made it through, but because of your experiences, advice, support, and strength, I have been able to overcome my struggles and fears. Thank you all, I appreciate each one of you! Have a super fantastic and blessed day!
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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