Constant Filling of Ostomy and Stomach Cramping

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603
GrannyRocks
May 27, 2024 7:49 pm

My ostomy bag is filled at least halfway each time I have to pee, and I pee a lot because I drink a lot of water. I am up every 1-2 hours all night peeing and emptying the bag, then feeling dizzy when I lay down. I thought maybe it was dehydration, so I increased water and added some hydrating salts. It made it worse. I had some bad cramping in my lower abdomen, so I finally took some Imodium, which seems to have helped a bit. I also have leukemia, so I don't know if that's involved in this issue either. I had my surgery on March 12, 2024. Does anyone have a similar issue, and did you resolve it?

w30bob
May 28, 2024 1:03 am

Hi GrannyRocker,

That's an interesting post you wrote. People usually get dizzy when they stand up, not when they lie down. Assuming that's not a typo, you may have a viral ear infection. Getting dizzy when lying down isn't related to anything else I can think of other than a type of vertigo called BPPV, which stands for Benign Paroxysmal Positional Vertigo. Try saying that three times real fast after you've had a beer or two! BPPV typically only occurs for short durations and a change in head position usually stops it. Note that a viral ear infection can cause diarrhea, even though you wouldn't think the two are related in any way, so that could explain your increased output. And drinking more would make that worse. You didn't mention why you got your ileostomy or if any small bowel has been removed... so I'll leave it here for now.

;O)

Hugo

This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.

CrappyColon
May 28, 2024 2:06 am

Hi, are you currently undergoing chemotherapy for your leukemia?