I ate lima beans the other day. They were frozen, and you microwave them. I was really a little nervous because beans don't always digest well for me. I had a small amount and chewed them very well, and guess what? No blockage. Everything went through okay. I was so amazed because I was afraid that with the skins on the beans, and they were not soft and mushy either, it would not go well. But it did. Just thought I'd share a food victory for a change.
infinitycastle52777
Oct 23, 2024 6:49 pm
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Posted by: Karen & Stella
Fay,
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
infinitycastle52777
Oct 23, 2024 11:04 pm
Oh, I don't know. I am a little timid about trying new things. Having had one major blockage that landed me in the hospital, I don't try new things too often. But I might get more adventurous. Who knows? I had potato soup tonight. I think it had onion in it, so I will be seeing that in my bag tomorrow. LOL
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infinitycastle52777
Oct 23, 2024 11:05 pm
Not a fan of lima beans? I am not so much either, but I need to work some veggies into my rotation. I don't get enough veggies.
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kittybou
Oct 23, 2024 11:18 pm
No, ma'am. Or turnips or rutabagas. Well, if you put enough sugar and cinnamon on the rutabagas, I might choke them down. ;)
infinitycastle52777
Oct 24, 2024 1:15 pm
I don't even know what a rutabaga is. I don't like artichokes. There's something gross about them. The way asparagus smells, too, I don't like it. I don't think I could eat either anyway. Marvin the Stoma wouldn't like them, I don't think.
kittybou
Oct 25, 2024 1:14 am
I will eat your artichokes and asparagus. You may have all my share of legumes! Parsnips look kind of like carrots, only white, smell, and taste terrible to me.
infinitycastle52777
Oct 25, 2024 4:58 pm
I'm not eating anything that looks like a carrot. My stoma doesn't like carrots. I am surprised it liked lima beans. You can have my artichokes and asparagus. LOL
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