In a few months, I'm due to undergo a loop illeostomy reversal surgery.
I've not heard good results.
Constant emergent diarrhea.
Worried about this and would love to hear from people who had similar reversals.
Thanks!
Stephanie Stoma
Nov 25, 2024 2:46 am
lorgriffin
Nov 25, 2024 7:13 am
Hi Stephaine
I'm 4 weeks post my ileostomy reversal today and so far it's been a really smooth recovery. I was really worried about what the recovery would be like after all the stories of accidents and horrible diarrhea, but that's not been my experience.
My bowel started working after 3 days and I had 1 day where I went 6 times, but that's been the most so far. I had stocked up on all the wipes etc., but have not needed to use them.
I appreciate this isn't everyone's experience, but it has been mine. My surgery was straightforward, less than an hour, and I had no hernias or anything to complicate things, so I feel that must have helped.
Best of luck with your reversal and remember we all have different journeys; hopefully, yours will be smooth sailing.
Lori
Why Join MeetAnOstoMate?
This is a remarkable community of 40,973 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
Privacy is very important - your profile is not visible to the outside world.
40,973 members
What Members Are Saying
Posted by: iMacG5
When I found this web site, I didn't think its name had anything to do with actually meeting an ostomate but I later learned there were some folks who did meet and develop relationships. How good is that? That wasn't my intention. I definitely didn't want anyone to meet me. I felt broken and wasn't prepared to express those feelings. I thought it was a place where ostomates wrote about themselves, posed questions, shared thoughts, told jokes and, sometimes, just vented. I thought of it as a community of folks with similar interests and various degrees of experience. Mostly I found some of the most caring, selfless, wise and understanding people I ever imagined. I was so impressed with some of the writings; not because of their literary value but the way in which they addressed such a very complex environment. I read hundreds of exchanges and admired the way folks cared for each other. I became hopeful with my own situation and looked forward to the next day's offerings. Certainly some contributors stood out with their experience or particular skills in addressing some things but it seemed like a total effort with synergistic results. I felt blessed to have found this site. I still do.
Mike
Mike
IGGIE
Nov 25, 2024 1:39 pm
G-Day Stephanie, I hope all goes well for you and yes, there can be some issues, but there are also a lot of people for whom it works perfectly. But always remember, if you're not happy, you can always go back to your stoma. Keep in touch. Regards, IGGIE
Advertisement
Hollister
We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
Read what they had to say.
Read what they had to say.
TerryLT
Nov 25, 2024 10:11 pm
Hi Stephanie, The simple answer is that if you still have your colon, or most of it, you have a better chance of a good outcome. If you have no colon, and they are planning on just hooking your ileum up to your rectum, there is more likelihood of problems with reversal. Very frequent elimination and diarrhea, but also due to the caustic nature of output from your ileum, the skin around anus can become irritated and raw, with little to no chance to heal, from constant elimination. This may not be the case for everyone, but it is something to be aware of. I have an ileostomy (loop) with no colon, and was told I could have a reversal. After doing the research, I decided not to.
Terry
My Ostomy Journey: Jearlean | Hollister
