In a few months, I'm due to undergo a loop illeostomy reversal surgery.
I've not heard good results.
Constant emergent diarrhea.
Worried about this and would love to hear from people who had similar reversals.
Thanks!
Stephanie Stoma
Nov 25, 2024 2:46 am
lorgriffin
Nov 25, 2024 7:13 am
Hi Stephaine
I'm 4 weeks post my ileostomy reversal today and so far it's been a really smooth recovery. I was really worried about what the recovery would be like after all the stories of accidents and horrible diarrhea, but that's not been my experience.
My bowel started working after 3 days and I had 1 day where I went 6 times, but that's been the most so far. I had stocked up on all the wipes etc., but have not needed to use them.
I appreciate this isn't everyone's experience, but it has been mine. My surgery was straightforward, less than an hour, and I had no hernias or anything to complicate things, so I feel that must have helped.
Best of luck with your reversal and remember we all have different journeys; hopefully, yours will be smooth sailing.
Lori
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Posted by: iMacG5
Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike
IGGIE
Nov 25, 2024 1:39 pm
G-Day Stephanie, I hope all goes well for you and yes, there can be some issues, but there are also a lot of people for whom it works perfectly. But always remember, if you're not happy, you can always go back to your stoma. Keep in touch. Regards, IGGIE
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TerryLT
Nov 25, 2024 10:11 pm
Hi Stephanie, The simple answer is that if you still have your colon, or most of it, you have a better chance of a good outcome. If you have no colon, and they are planning on just hooking your ileum up to your rectum, there is more likelihood of problems with reversal. Very frequent elimination and diarrhea, but also due to the caustic nature of output from your ileum, the skin around anus can become irritated and raw, with little to no chance to heal, from constant elimination. This may not be the case for everyone, but it is something to be aware of. I have an ileostomy (loop) with no colon, and was told I could have a reversal. After doing the research, I decided not to.
Terry
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