I had my ileostomy refashioned in August of last year. It has now once again started retracting and looks exactly how it did before I had it refashioned. Any advice on what I could do?
Past Member
Mar 10, 2025 7:52 pm
infinitycastle52777
Mar 10, 2025 7:59 pm
That sounds really rough. I'd hate for you to have to have another surgery, but that might be what it takes. Talk to your surgeon or doctor about it. Maybe someone else on here will have better advice. My stoma is starting to retract, but I think it is because I have a parastomal hernia. You might check to be sure you don't have a parastomal hernia, just to be sure that isn't why your stoma is going inward.
This is a remarkable community of 40,840 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
Privacy is very important - your profile is not visible to the outside world.
c57557555
new ostomy ostomate we all gone throu filling low deppessed over your ostomy ./this is a prety open grpup./right now summer its a low re sponces lot of familiy going ons nrrd some thing call out some one deling with your deal,.// some one will post some thing sooner later. /time of year. take care good luck
Past Member
Mar 10, 2025 8:05 pm
A nurse did come see me on Friday, and luckily there is no hernia that they can see.
Advertisement
Hollister
It’s natural to feel stressed about possible relationship issues related to your ostomy.
Explore common concerns about new and existing relationships, and how to put your mind at ease.
Explore common concerns about new and existing relationships, and how to put your mind at ease.
Panko
Mar 10, 2025 8:37 pm
I just had my prolapsed stoma amputated and refashioned after 3 years of agg!
Go and see Mr. Ian Jenkins at St. Mark's Hospital, which has relocated to the Park Royal Hospital in Acton, London.
He is a top bowel surgeon who is head of the National Bowel Hospital in England.
I know you're up north, but he will be well worth getting a second opinion and hopefully will sort you out!
TC Adam
Past Member
Mar 10, 2025 10:56 pm
Hey, I have had my stoma redone and moved a couple of times and with retractions. So when it comes to retractions, if a convex wafer or deep convex wafer doesn't work, or anything to protect the skin, and you are constantly leaking, they would have to redo your stoma. But since they already did a revision, they would have to do a relocation. Obviously, you are having issues with your stoma being in that spot.
How to Get Back to Activity after Ostomy Surgery with Kimberly | Hollister
