Mastisol Experience: Keeping the Bag On but Not Perfect

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Dwild-WA
Jun 24, 2025 11:18 pm

I got the Mastisol from the first colostomy nurse we met with; I simply forgot about it—probably because it's kind of nasty-smelling stuff. I just used the last of my bottle, and then the new bottle arrived. It is kind of working to keep the bag on and the output going into the bag, although it too gives up the ghost after a day and a half. Today's version is feeling not so great, sort of continuing to sting. I did manage to get an appointment with an ostomy nurse—it's August 1st. 🤬 I will likely see the surgeon before that! I am having a PET CT scan and an MRI this week per the surgeon's orders, as she wants more information before she proceeds with reconnection. She says taking down a colostomy is pretty major surgery, and my immune system needs to be in top working order to achieve the best recovery, plus the cancer needs to have not returned…. Of course, I think it's hard for my immune system to be in great working order with my skin under daily attack, but what do I know? I have been trying to continue my walking program, although now my walking program takes place at Costco! 🤣 I figure when I add up the parking lot and cover all the rows, I am still getting a workout in. 👍

SusanT
Jun 25, 2025 3:14 am

Increase your protein intake. It will help with your surgery and recovery.

Good luck!

Dwild-WA
Jun 25, 2025 4:34 am

I have been trying to find a way to increase my protein without aggravating my gout, which I don't have symptoms for, but it can still damage my kidneys. This means I am only supposed to eat one handful of meat per day, although I can eat lots of eggs without issue. So, I've added one or two Aloha bars to my daily intake since they are vegetable protein in a highly palatable form. I also have to drink lots of water to flush those same kidneys. Wish me luck with all the scans! I said, what the heck, let's do the mammogram too, and get my whole body covered!!!

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SusanT
Jun 25, 2025 12:06 pm

Lol, glad you're getting the mammogram too. Can't have any more surprises... you've had enough. That's why I rushed out and got my mammogram a few days after my doctor ordered it.

Good luck with everything! You deserve to be healthy.

Dwild-WA
Jun 26, 2025 2:19 am

Oof! The mammogram was easier than the MRI - why did I schedule both of them on the same day? So I could follow it with PET CT prep the next day! I will say that at least it's easier than prepping for a colonoscopy; I just really miss my daily fruit servings!

 

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SusanT
Jun 26, 2025 11:41 am

The same day is pushing it a bit! Lol