I got the Mastisol from the first colostomy nurse we met with; I simply forgot about it—probably because it's kind of nasty-smelling stuff. I just used the last of my bottle, and then the new bottle arrived. It is kind of working to keep the bag on and the output going into the bag, although it too gives up the ghost after a day and a half. Today's version is feeling not so great, sort of continuing to sting. I did manage to get an appointment with an ostomy nurse—it's August 1st. 🤬 I will likely see the surgeon before that! I am having a PET CT scan and an MRI this week per the surgeon's orders, as she wants more information before she proceeds with reconnection. She says taking down a colostomy is pretty major surgery, and my immune system needs to be in top working order to achieve the best recovery, plus the cancer needs to have not returned…. Of course, I think it's hard for my immune system to be in great working order with my skin under daily attack, but what do I know? I have been trying to continue my walking program, although now my walking program takes place at Costco! 🤣 I figure when I add up the parking lot and cover all the rows, I am still getting a workout in. 👍
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“I mostly read and still feel like I belong.”
“Doctors took notes; they want others to find this website.”
“From midnight blowouts to big wins, there’s always a hand to hold.”
Every morning when I enjoy my big cup of coffee I scroll through this site and this warm feeling just overwhelms me.
I never post anything (too shy and it feels like I don’t have anything of interest to share tbh) but I sure read a lot of posts from you guys and they are so informative, supportive encouraging and so so full of love and a big dose of humor.
I feel like part of the best family in the world (even though I am just sitting quietly in the corner lol).
I just wanted to share that feeling and say thanks to all of you for being so wonderful.
And also, please keep some fingers crossed for me this week. I have my blood test on Thursday, checking my CA 125 levels. Ovarian cancer reoccurrence fear unlocked again. I hate it!
Lots of love from Sweden
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