Ileostomy Reversal Concerns After 5 Years

Replies
4
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228
Ostomate44
Jun 30, 2025 8:01 pm

I saw my colorectal surgeon today after having my flex sig and ileoscopy last week. I was informed that I am a potential candidate to get my stoma reversed and attached (stapled) to the remaining sigmoid colon, but it's been 5 years since I had the stoma created, and I'm somewhat concerned. It's been so long since I used them. I was wondering if anyone else has had an ileostomy created due to Crohn's, but mainly also to help with recurrent C. diff infections. If you have any experience, I would appreciate hearing about your journey and the issues you faced and conquered or still have. I appreciate your time, and thanks in advance for reading my post and any advice you may offer.

Jay

IGGIE
Jul 01, 2025 10:01 am
Very helpful

It's up to you to decide if you go ahead with it, but after 5 years, are you handling your stoma OK? If so, you might even decide to keep it.

IGGIE

c57557555

New ostomate, we’ve all gone through feeling low and depressed over your ostomy.
This is a pretty open group. Right now, in summer, it’s a low response time—lots of family things going on. If you need something, call out. Someone dealing with your situation will post something sooner or later.
It’s just that time of year.
Take care, and good luck.

Ostomate44
Jul 01, 2025 12:26 pm

IGGIE

Thanks for the response! I'm weighing my options. I've had some rough times with "my little friend." It's been a long road of issues, and I'm trying to decide if the possibilities of the unknown will benefit me or throw me into a worse situation. It's a tough decision and one I don't take lightly, so I'm just trying to research all I can and do what is best for me.

ron in mich
Jul 01, 2025 12:50 pm
Very helpful

Hi Jay, I would think it comes down to how much colon you have, how many bathroom visits a day you want to deal with, and how active the Crohn's is.

Ostomate44
Jul 01, 2025 1:52 pm

Ron

I have 10 inches of sigmoid and very high output now. I was told to expect about 6-7 movements a day, which is less than I have now, but I've learned nothing is guaranteed, especially with my stoma. As far as the Crohn's is concerned, it's being managed with my biologic. Thanks for reading and responding; it's much appreciated.

 

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