When I had my surgery almost 60 years ago, a nurse at Mayo suggested naming my ostomy. I'm not sure of the psychology behind that, but it turned out to be a good idea. I named mine Cedric.
Peabody
Jul 11, 2025 10:16 pm
warrior
Jul 12, 2025 2:13 am
Yes, indeed, this topic is roadkill 😄. Talk about beating a stoma 🐎 horse to death.
That last topic had a good run with stoma names. People like the idea of naming their alien spud turd maker.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Ben38
Jul 12, 2025 7:17 am
It was never suggested to me when I had mine 36 years ago, but each to their own. If it makes someone feel good and confident about their stoma, go for it.
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Jul 14, 2025 1:18 pm
I hadn't thought about naming mine, but I can see how it might help with acceptance and even lighten the mood a bit. It's kind of like giving a bit of personality to something that's now a part of your everyday life. <3
My Ostomy Journey: LeeAnne | Hollister
Peabody
Sep 01, 2025 1:25 pm
Yes, I am a newbie to this site. I have had an ileostomy since 1968 when I was 21. I'm 79 now... do the math. I have a lifetime of stories to tell... Question: how do you handle telling other people that you have an ostomy? My experience has not been good. I completed 40 years of working as a secretary in a prestigious law firm, and no one knew about the ostomy. I still keep my ostomy a secret. Any thoughts?