Considering Colostomy Reversal: Weighing My Options

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Dwild-WA
Jul 24, 2025 5:39 pm

I just met with my surgeon this morning about the results of my MRI and PET CT scans that she ordered. She wanted to know as much as possible about my insides before she considered reversing my colostomy. She is telling me that she is willing and able to do it, with the caveat that my hernia behind my midline might complicate the surgery in terms of what she can see once they fill my belly with gas, and that complication might lead to another midline incision - which was a bear for me to heal the last time they did it. She told me that with my current status in terms of scar tissue, I will most likely (more than 50%) have to have a temporary ileostomy while my reconnected intestines heal. Also, at 69 years of age, I am healing a little slower, so when she says 6 weeks, she also says it might take 12 weeks for me to heal enough to reverse the temporary ileostomy. I have some time to consider my options; my next appointment with her is in September, and if I decide to go ahead with this surgery, it will become my colonoscopy before surgery appointment as the prep will be the same. I really like my surgeon; she is realistic and at the same time still positive, and totally understands that this is a big decision I need to make.

EDIT: For those who know my sad skin saga already, the temporary ileostomy would be in the exact troublesome spot as my current colostomy.

SusanT
Jul 25, 2025 1:36 am

It's a huge decision. I think you've seen the pros and cons on this board, so you are as well informed as you can be to make this choice.

Good luck, whatever you decide.

Posted by: Primeboy

Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!

I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.

On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!

Someone once wrote that our children are the letters we write to the future.

PB

IGGIE
Jul 25, 2025 2:28 am

G-Day,

This one is up to you.

But if it were me, after reading some of your other notes that you have now found a good-fitting stoma bag, I would consider keeping my stoma and not going through a lot of invasive surgeries.

Think deep and hard.

IGGIE

Beachboy
Jul 25, 2025 3:52 am

 

 

ron in mich
Jul 25, 2025 1:48 pm

Hi D, I agree with Iggie and BB. When I had resection surgery, I was 67, twice as old as when I had my original surgery, and it took longer to heal.

 

My Ostomy Journey: Jearlean | Hollister

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Jayne
Jul 27, 2025 11:35 am

Hi D

You have well defined the upshot of your consultation - and clearly have an experienced and measured surgeon, whom you like and feel comfortable with. This alone is probably the most important part of the equation - certainly from the point of a solid foundation for what is under consideration.

Clearly no one but you can make the decision for you, as it's a very personal call; listen to your heart as well as your intellect and try to move in alignment with your own 'gut' feelings..... and I mean this in the multi-sense implied....... for IMHO our bodies are capable of 'telling' us much - once we learn to 'listen' to them and work with our own 'inner' needs both on a practical, but most importantly on an emotional and spiritual basis.

You have time - so long as you retain focus and come with grace to your own point of understanding and feeling of what is best for you.

Hugs

~ ~ ~ ~ Jayne ~ ~ ~ ~

Although not in the position of considering a reversal - we are of similar age - but very different histories, and I can only iterate, do what you feel is best for you [not for others, but for you].

BW,

J.

Philip P
Sep 03, 2025 10:28 pm

Hi. I am in a similar situation in terms of deciding 'to reverse or not reverse.' I had an unexpected stoma last November. I also developed a hernia I would like reduced. However, I had a colostomy and only recently had an endoscope, which determined that most of my rectum was removed. My surgeon says reversal is feasible, and they suggest I go for it as I am still young (I am 63). But I fear the risk of LARS and being in a worse situation lifestyle-wise than I am now with the bag. The stoma has functioned fine. Although I have developed considerable physical fatigue, which I did not have before the operation.

So, it's decision time. All I can say is to reiterate what many others have said: each of us is in a totally unique situation, and our decision is our own. I am giving myself more time to decide. I won't be rushed into it. I guess it is about weighing how much I don't wish to live with a stoma versus accepting the risks in reversal surgery and the risk of possible negative impact on lifestyle afterward.

Good luck with whatever you decide. Philip

Philip P
Sep 13, 2025 7:46 am

Many thanks, Jayne

Jayne
Sep 13, 2025 8:42 am

:-)

Good luck

BW

J

Philip P
Sep 14, 2025 5:53 pm

Hi. Just wondering if you have decided to go with the reversal?

Philip