Oldest Unrevised Stoma: Anyone Else?

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9
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286
Raw926
Jul 25, 2025 11:25 am

I've had my ileostomy since age 13, making it now 53 years old. I have never had a revision and have been having issues since it retracted due to weight gain for so long. I'm just wondering if anyone has their original stoma that was never revised and how many years it has been? Am I the oldest original stoma?

Ben38
Jul 25, 2025 11:34 am

Yes, I still have my original stoma, a few years younger than yours. Mine's only 37 years old.

ron in mich
Jul 25, 2025 1:30 pm

Hi guys, I had my first stoma for 33 years until the scarring from Crohn's got too bad.

Bill

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that might express something quite new.
Then I read previous points of view,
which said the things I wanted to.
I would endorse the things I’ve read
about what other folks have said,
for these are the benefits and things
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When I was an initiate, (novice)
it seemed to be appropriate
to express myself in rhyme
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When contemplating what to write
with contributing to this site,
it seemed to me, my ostomy
could be expressed in poetry.
Thus, when I had something to say,
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infinitycastle52777
Jul 25, 2025 1:58 pm

Nope, I don't have my original stoma. I lost it about 2 years after I got it. But I have had my current one for 2 and a half years.

SusanT
Jul 25, 2025 7:01 pm

Don't look at me, coming up on 1 year for both my stomas.

 

My Ostomy Journey: Ryan | Hollister

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Axl
Jul 26, 2025 11:27 am

I'm not even in the race. 🤣

Morning glory
Jul 28, 2025 9:45 pm

38 years with original stoma.

Raw926
Aug 23, 2025 2:08 pm

Do you have issues with retraction over the years?

Morning glory
Aug 23, 2025 7:03 pm

No, I haven't.

Raw926
Aug 24, 2025 3:59 pm

Wow, morning glory! What is your secret to not experiencing retraction over so many years? Type of ostomy, keeping weight stable?