I've had my ileostomy since age 13, making it now 53 years old. I have never had a revision and have been having issues since it retracted due to weight gain for so long. I'm just wondering if anyone has their original stoma that was never revised and how many years it has been? Am I the oldest original stoma?
Raw926
Jul 25, 2025 11:25 am
Ben38
Jul 25, 2025 11:34 am
Yes, I still have my original stoma, a few years younger than yours. Mine's only 37 years old.
ron in mich
Jul 25, 2025 1:30 pm
Hi guys, I had my first stoma for 33 years until the scarring from Crohn's got too bad.
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infinitycastle52777
Jul 25, 2025 1:58 pm
Nope, I don't have my original stoma. I lost it about 2 years after I got it. But I have had my current one for 2 and a half years.
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Raw926
Aug 24, 2025 3:59 pm
Wow, morning glory! What is your secret to not experiencing retraction over so many years? Type of ostomy, keeping weight stable?
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