For many years, I was either unable to travel or suffered with Crohn's while traveling. Two weeks ago, I took my first vacation with an ostomy and was able to enjoy my time away. Not only a vacation, but a vacation at Disney/Universal with a ton of walking, rides, and all kinds of food. I did have some anxiety to start with, but it turned out to be misplaced. It was such a great feeling to be ...
In a few weeks, I'll be sending my car back to its origin up north since the lease is ending, and I'm thinking of ways to transport around town. It's pretty small, so I could walk to all the places I'd really need, but it might be nice to have a bicycle or moped to go a little further out some days. Has anyone ridden either one 1.5-2 months post-surgery? Was it okay on your tummy?
Also, today ...
ONE THING THAT I’VE LEARNED ON THIS SITE is how many different bodily malfunctions can lead to a person having to have ostomy surgery. In my own case, it was ulcerative colitis which, after a painful and lengthy preliminary engagement, put me in the hospital in November, 1963. I was in sorry shape, hurting badly, and confined in what was called a semi-private room in upstate New York. Tel ...
Hmm...I've been a member here of this wonderful community for some time now and it's been so wonderful to read about the journey of others who are finding their way. I've had my urostomy since I was eight years of age and I had a diverted bladder before that. The latter didn't quite work and the urostomy was created. Growing up with it and the challenges that were presented over the years of m ...
I'm curious — has anyone here been pregnant with a stoma? How did it go? Was it extra challenging, or just another one of those “figure it out as you go” adventures?
My main worries are the usual suspects: keeping up the energy, the growing belly changing how the appliance fits (because my stoma already has a mind of its own!), and the whole idea of being pregnant after being sick for ...
Hello, I have stage 4 colon cancer since 6/24 and have to deal with an ileostomy and a stoma named George. He is very active, and I do have leakage sometimes at night. I am thinking about the skin barriers. Anyone have problems like this and suggestions?
I have noticed that some people are talking about the cost of products.
I am wondering what the costs are that you have to carry.
Prior to surgery, I had specialist appointments with colorectal and plastics. Also, I had CT scans, ultrasounds, biopsies, and pre-op meetings. I had surgery and spent 23 days in the hospital. I had daily hospital care at home, followed by chemo and radiotherapy. Un ...
I recently discovered that Cortizone 10 comes in a spray, and it is a game changer for me. I have sensitivity to adhesives, so my appliances were making me miserable with rashes, blisters, and irritation. I had heard of other ostomy patients using Flonase, but that didn't seem right to me. When I saw the Cortizone 10 spray, I had to try it. I sprayed it on, let it dry, then sprayed the barrier ...
All the products available to us ostomates are making me age faster than a banana….
So far, the above equipment has proven to be my best fit after trial and error for the last 5 years in terms of less is more. As a minimalist, as designated by my daughter, I am ever in search of the least amount of equipment and the least amount of time spent on this not-so-loved ileostomy of mine, aka Seymo ...
I have been away from this website for a short time. I decided to come back and see who's on here and what's going on. I'm looking for a friend who could turn into more than a friend. I'm lonely and hoping to find someone who has the same thing as I do so that it would not be an awkward situation.
