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Ranting


 
I haven't dated since my surgery a year and a half ago. I just can't imagine any woman would or could be interested in me now. I'll just have to accept being alone for the rest of my life. It will be very lonely, but at least no one will worry about me when I fly into a fit of rage about my predicament, which happens alot now. I don't want any sympathy. I don't need anybody's inspiring words. I'm posting this to rant and keep from breaking things or hurting myself for at least while I'm typing. I hate my life to bad I can't change things.
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i have dated since my ostomy (but only with another ostomate) its the person that matters not "having a bag".you have to be happy with yourself first then other people will be happy with you.after all its only a bit of "altered plumbing".

 
No words of inspiration or sympathy, as you asked my friend.

Only thing I have to say is ....YOU ARE NO DIFFERENT THAN ANYONE ELSE ON THIS SIGHT. We all deserved better, but have to play with the cards we were dealt.  There are some MUCH younger and sicker than you or I. We all feel your pain, frustration and fear. You haven't cornered the market on self-pity either.
If you're alone or isolated, change it. You can't change whats happened to your body,
BUT......... YOU CAN CHANGE HOW YOU LIVE WITH IT. It's the one thing that you DO have complete control over buddy.
No one understands more than we do. We're here to listen and I'm personally honored when someone feels safe enough to share  their feelings with me.  I too was afraid and lonely when I accidently found this site looking for supplies. I'm still amazed by the shear numbers of us around the world. It gave me hope , assured me that I had the right to look forward instead of backwards, consider all the possibilities, but more than that,  I had to accept that I lost my colon not my brain or heart ....my future is MY responsibility.

I'm so glad you decided to rant today, makes me feel better just knowing you remembered we were here.......YOU ARE NEVER ALONE...there's an army of us!!!!

Your ostomy sister, BEG

 
Browneyedgirl - you said it all and said it beautifully.  Thank you.  I needed to hear it also.

Death, to you ...  and to each and all of us.  I hope you keep reading.  There are amazing stories of dating, relationships, love, and acceptance.

Carol,  'dawneagle'
 
I know how you feel. I was married when i had my cancer surgery and lost my bladder ,prostate and most of all my man hood. Than she left me and we divorced. i was forced in to being single again, tryed to date but didnt work out . had to deal with rejection than i had a lady on this site tell me if the cant se past the bag they arnt worth having. Ive come to realize when the rite one comes a long i will jump in head first. Keep your head up keep looking. Dont let life get you down, ive been there and its hell . But like the song says If your going through hell keep on going and maybe you can get through before the devil will know your there. Ok im done if you want to talk let me know.
   Mike

 
Other than being real bitter about your situation, you didn't go in to what your
prognosis is.  Will you be able to have a reversal?  Do you have friends that are
empathetic towards you?

I hear this a lot from souls concerned about dating.  It seems  to
me that while reading between the lines that most mates who are complaining
about being an osteomate are concerned about their date finding out about the bag and them rejecting them.  Ain't but two ways your date is going to find out about the bag 1.  you tell  them...which seems silly to me, or 2. they find out another way, which usually consists of a sexual encounter.  It is possible to have a dating experience with out even mentioning the fact that you have "the bag"
I probably am a a lot older than you, but I understand the "date" thing.  Time to "man up"
and if you are sincere, date without baring your soul or another part of your anatomy.

 
Dawneagle, I totally agree with your sentiments. Beg put it perfectly. We all need some reassurance every now and again about where we're going. And being a daily reader of the forums and blogs on this site always inspires me. I've spent many sleepless nights recently worrying about what lies ahead for me, but knowing there are kindred spirits out there helps so much and more importantly being able to talk about it with someone makes the difference. I've been through the "mill" of divorce some 12 years ago and spent so long doubting myself that life was passing me by and this whole new chapter of my life has changed my perspective. But I feel its changed me for the better. Don't be one of those who Mark Twain talks about when he said "Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do." Get out there and make some new friends! Take care, Colm
 
Hi mate.Shortly after my surgery my wife left me.My world was over.No woman could fancy a man with a colostomy i thought.I became depressed and miserable.One day i joined this site,and people gave me hope.I joined another dating site,and before long had met a lovely woman who only lived a mile away.She has,nt got an ostomy,but fully accepts me having one.We are now buying a property in the Welsh hills and life could,nt be better.So you just have to believe that thing,s can get better,and will.Good luck.

 
"That's the way there Welshman,  OUTSTANDING !!!" I couldn't be happier for you. I can honestly say that I have never loved nor been loved more than now. Just further proof that you never give up. BE be the kind of person that you want to be with, and it's amazing how things can change.....

BEG
 
Death, I'd love to share some sympathetic words with you, but will refrain.  I'd love to be able to rant, but if I allow myself to start spewing out my rage, I'm afraid of never being able to stop.  Had an ileo in 2009. Husband died in 2010.  My dog kept me going when my husband died.  For months, I only got out of bed to feed him and let him out.  He's my best bud, I talk to him all throughout the day as if he's a person (which he is) and wouldn't be surprised if one day he started to talk back.  He's my first dog and we've been together over 8 years.  Last week the vet told me he'd be thrilled if the dog was still around a year from now.  I believe that if I'm ever going to lose it, it will be if my dog goes first.  I'm close to my family but don't see anyone more than once or twice a year, max.  Don't know why it works this way, but without increasing your rage, I feel like you've taken some of mine out of me, so I hope you don't mind me just saying thanks.

BEG, I've been seeing alot of your posts lately, agree with everything of yours that I've read and feel both inspired by and envious of your serenity and acceptance of your situation.  You seem to know just what to say, regardless of the topic.  I'm a few years older than you, but going by how you sound, I'd guess your ostomy age is older than my 2 1/2 years.  You're one of the people on this site I want to be as my ostomy grows up if I don't get a reversal and don't lose my sanity.  Thank you for your words and your wisdom.
 
                                 
Browneyedgirl wrote:
"That's the way there Welshman,  OUTSTANDING !!!" I couldn't be happier for you. I can honestly say that I have never loved nor been loved more than now. Just further proof that you never give up. BE be the kind of person that you want to be with, and it's amazing how things can change.....

BEG
Thanks Browneyedgirl.Never give up.Its onward and upward,to infinity and beyond for me and you.
 
Not going to offer words of wisdom, or tell you what to do or how you should deal and or feel about your self esteem.  Just simply going to say....I can relate.   Sometimes just knowing someone else can relate is enough.
 
Um anyone notice death didnt reply i sure wouldnt date somone who wants to smash eveything up ... And yes i can relate too ..... If he stayed he might of met a lady friend in here DUHHHHH   Like yeah i jumped off a bridge just cause i could (bungee) rope in tow hahahah but thats not cause i had my ostomy life i thought was over coz i was turning 30 LOLOL

 
I for one, would like to know what happened to him.  However, he pulled the rest of us into a great discussion.  I hope he checks in again and tells us a few things.  I do wish him well.
 
My self will never look at others the same. The extra look at the lump in my side, the vertical scan as try to figure it out. Not easy to deal with so I work harder at accepting others and to see who they really are. We've all been on one end or the other of the spectrum. My focus is on generating good karma. Maybe it will come back to me- certainly can't hurt.
 
Hey, you are a handsome man. I hate my new body, too... but I have been dating. I haven't wanted  to have sex with anyone, but I have old fashioned moral values... most of the time.  This protects me from getting my heart broken.  Anyway, the last guy I dated didn't mind that I had a bag, and he wanted me, but I said no. I broke it off because he is still married to his ex wife and in love with his ex girlfriend... so... not the best choice.

I do believe you should ignore the ostomy more. It is hard, but get out, get social, and forget the bag. Be normal.  You never have to tell someone about the bag until you think the relationship is heading towards sex.  Save sex for later... when you've developed a great rapport.  Hug, kiss, and adore a woman, if you want, but wait until you know you want to trust her before you reveal the bag. I am sure someone who loves you will not mind it at all.

Love yourself.  Know that you are lovable.

If I were your age, and lived in your city, I'd love to date you. And I'm picky. So if I would, I know many other women would, too. And... all it takes is one, you know. You just need to meet one.

Good luck. You are worth loving. Know that!  And find someone you want to GIVE love to. THere are other lonely people, you know. SOmeone out there needs to be loved. Find her.

 
DH
 
What the hell happened to FOR BETTER OR FOR WORSE I can't believe that someone one would divorse there husband or wife because of a bag.I must have married a saint,because he has supported me all through this and even helped me search for the type of pouch I needed. And it's not like they have to see the contents of the bag. They have pouch covers you can where over them.And for you ladies out there, There is a sight called  MY HEART TIES. They make a beautiful heart shape pouch covers you can where over your pouch for intimate times.
 
I was in a serious relationship of 4 years, was planning to get married,  when I found out I had cancer and got my colostomy.  She left me pretty quickly.  Had a hell of a tough time dealing with things mentally and emotionally, but eventually I decided to get on with my life and live it.  I ended up meeting the most beautiful woman I've ever seen in my life, she is so freaking hot that it is crazy.  Not only is she hot, but she is nice, caring, romantic, gentle...a dream come true.  She's ten years younger than me and she doesn't have a ostomy or any other slight imperfection.  We got married, it's been the best four years of my life, and now we have our first child.  She tells me all the time she married me because I have a colostomy.  She says the fact that I get on with my life and haven't let it slow me down, that I don't complain about all the accidents and frustrations of an ostomy shows a strength of character that none of those other guys out there can ever match.  And while she says that to me...there is some truth in it.  People who have been through the mill, but come out stronger and wiser for it are so much more "manly" in the case of men, than those little poser boys who don't know up from down.  Same for women...a woman who is mature and strong and wise is the personification of hotness, regardless of what is stuck to her belly.  And to drive the point home, it is really all the shallow people who are truly ugly and undesirable.  Smile

 
Doesn't get better than that !!!!!

 
Thank u to all for your comments.  I have Crohns, psoriasis, and now arthritis throughout my body.  It's an extremely tough pill to swallow being that I once could run for miles laughing, and now all I can do is take pain killers a veg THE FUCK OUT!

 
I understand.

I too, along with many others here struggle with Crohn's (and other disease process's) and the lovely flairs. Arthritis  joint involvement is just an associated sidekick along with the occassional unexplainable seizure type episodes, numbness, tingling sensations and swelling,  compounding by fatigue, pain and nausea. Thanks to steroids, I have an inoperable bleeding heart valve, hypertension and reoccuring shingles. Like you, I've succumbed to total frustration and depression at times.

Just want you to know that what you're feeling is "normal", and no one is judging you. I just don't want it to keep you down too long, okay? There is "life"  before, during and after illness. You may not "Power Walk" today, but never underestimate what tomorrow may bring...........

On your side, I promise....BEG

 
Dear Death - and others,

I am wallowing around in my own stuff today - self pity.  I have my list of issues as do we all.  Speaking only for myself, my stoma stuff is so far down my list that it has almost no significance. It is almost equal to a stubbed toe - really irritating - nothing more.  

MS is probably my most accurate current diagnosis.  And I really don't care what they call it.  Pain and misery is unrelenting.  Every cell of my body in pain all the time.  I took pain pills all week to be able to be with visiting family, pretending to be 'fine', and now I am off everything again - second day with nothing more than Excedrin.  Difficulties seem overwhelming.  They are not, it just feels that way.  

I just talked with a friend and she reminded me that we essentially have two options.  We can change the situation or change ourselves.  The situation for most of us isn't changeable.  So that leaves one option.  We change ourselves.  We accomodate the situation. I change ME.

Some days I change 'me' into an upbeat positive person like others on this site.  Just now I am wallowing in my misery.  I will tire of that and will return to the better option of positive forward thinking before too long.  I hate all all the things I can't do.  

I hate giving up my small RV and my freedom to travel because I can't even manage that anymore.  I hate requiring help.  But I love doing my small art projects and writing my stories.  I am working on the things I love and pushing the things I hate back in some distant place in my mind and feelings. I am working to remember the things I can do and focus less on what I can't do.

Thank you all for being here to listen and share.  I know none of my issues are worse than any of yours. It is all just a bit heavy today. But getting lighter by the minute as I recreate my space and me.  I am posting a couple of new art zentangles on my profile. Silence.

 
Dawneagle.........I wish you strength during your struggle buddy. And may it be a comfort to know that I'm thinking of you.
Feel better soon, BEG

 
BEG, you are a comfort daily.  Carol 'dawneagle'

 
I feel your pain as well. So sorry.
 
Carol, you're in my thoughts.

 
Texas is a 'boot strap' place.  "Just pull yourself up by the bootstraps".  Cowboy boots have  small inside straps for a finger in each boot to help pull those tight fitting boots onto your foot.  Boots are for riding horses and walking in deep sh__ , or boot scooting - country dancing, or kicking something.  We in Texas have a tendency to think bootstrap therapy is all that is required for any life difficulty.  Just pull yourself out by those bootstraps.

I went to the bootstrap metaphor after listening to a political commentary about our Gov Perry.  One in five Texans lives in poverty.  Many more problems.  Solution.... "those people just need to pull themselves up by their bootstraps".  As if I (or anyone) would simply choose poverty and never feel overwhelmed by life.

I am just letting you know that I have a finger in each strap and am getting closer to pulling myself out of my muck.  The position is a bit awkward but it is a start.  I don't know whether to go for one foot at a time or try with both feet.  Seems like I need a stable surface where I can put that freed foot.  So just now I am looking for something stable - anything.

Maybe later I will tell you how to get out of those boots.  I may not have helped anyone else today but I have given myself a laugh just thinking about Texans, my dad, grandpa, and bootstraps - the answer to everything.

 
Oh Bless you Dawneagle. You really sound like you are at such a low. I appreciate your time when I first made an enquiry here and I hadn't had any other interest. I hope by sharing your pain you can pick up where you stumbled. I know I've had many days of late when all I felt I needed was a big hug but being able to share things here has helped relieve some of the pain. You most definitely are in our thoughts! Take good care, Colm
DH
 
Dawneagle, you sound like you have alot of strength and courage. Being diagnosed with MS is a tough pill to swallow. Several of my relatives have it .They don't know if it's hereditary though.I wish you well. Stay strong and keep blogging. You are a good inspiration.    Donna
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