Pilates And Ostomy With Hernia

TerryD

Wed Jul 11, 2012 2:03 pm

"This is the best website for people with an Ostomy, hands down. So much understanding. Everyone should join."

Hi everyone,

Love the help I get here!  Thanks to you I can now irrigate, though I am not doing it every day...but can when something is coming up that I want to be sure I have no output.

My question today is about pilates.  I don't mean just a pilates class at your local gym.  But rather going to a proper pilates studio where they use the reformer and Cadillac machines, and where the instructors are FULLY certified in the Pilates methods.  Classes are pricey and often one on one so you get individual attention.  Does anyone here do this?

I have a large peristomal hernia.  I am sick of being out of shape and not flexible like I used to be.  Since 2008 and two year long fights with colon cancer, surgeries, ileostomy, permanent colostomy and untold doses of chemo I mourn the loss of my health.  I have checked with my Doctor who says go ahead.  I have also read any places where it says exercising with a hernia will only make things worse.

Pilates uses isometric exercises and seems to me to be a reasoned approach to making changes carefully and slowly as your body can handle it.  Anyway I have signed up for a one on one evaluation with an instructor tomorrow who thinks she can help me.

Would appreciate any feedback from anyone doing this already!

Juuust_Jim

Wed Jul 11, 2012 3:26 pm

I would talk to you Dr first before a consultation with the Pilates instructor. That person is likely to be train in basic physical therapy only, and. a hernia is a serious a very difficult and often frustrating injury to overcome for anyone and someone with an ostomy its even increasingly difficult having had their abdominal cavity opened up. from what ive read from those having them that is that exercise that invokes a lot of bending at the waist and twisting is not recommended at all when you have a hernia and especially if you've had it repaired.

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TerryD

Wed Jul 11, 2012 5:34 pm

Thanks for your reply.....you must have missed the sentence where I wrote I had talked to my Doctor.....he has said ok to go ahead. That's why I wanted to hear from anyone who is actually doing Pilates...to see if it has helped or not. I was surprised he said ok, and I did explain the process. He basically told me not to do anything that hurt, and to take it gently and carefully. He's a big believer in trying to keep yourself motivated and healthy.

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Juuust_Jim

Wed Jul 11, 2012 5:43 pm

ahhh yes i did miss that part -didnt have my reading glasses on, sorry. I dont do Pilates, but I do go to the Gym 4 to 5 night a week and do weight training, and do Cardio and core training in the morning every-other day -so I do know a lot about fitness with an Ostomy. Just please be ever so careful when tensing you lower abs, because ive had several friends get Hernias and are always aggravating them just doing their basic daily routine around the house. You must have had a good core strength before you Operation -I did so it was very easy for me to get back in to my workout routine after surgery -and I had 4 total.

TerryD

Wed Jul 11, 2012 6:59 pm

Thanks Jim that is where I would like to get back to! I used to run, worked out with light weights and was in good shape before cancer got me. The chemo gave me really bad neuropathy in my hands and feet so I haven't moved around like I would like since the chemo finished. You are a walking billboard for staying healthy with an ostomy. I may never run again but I really want strength and health back.

I will be VERY careful......I am printing out some stuff for the instructor who sounds very cautious...will let you know how it goes....

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vulcanBMk2

Thu Jul 12, 2012 7:10 am

" A man's got to know his own limitations " ----Dirty Harry !!

frizbeekid

Thu Jul 12, 2012 10:13 am

Hey Juuust-Jim, I've started going back to the gym and have been cautious not to do sit ups or anything that would pull on my abdomen. The surgeon has me on light duty at this time,as I'm sure everyone is, I can pick up only 25 lbs he said. I lift a little more but watch myself making sure not to feel my stoma area pull. Do you have sit ups in your routine and and do you use any support ? Thanks

TerryD, good questions for others like myself to think about. I'm not going to do Pilates but Your attacking the problem the right way sometimes you just have to go around, over, or under the wall.

Frizbeekid

Juuust_Jim

Thu Jul 12, 2012 4:17 pm

frizbeekid wrote:

Hey Juuust-Jim, Do you have sit ups in your routine and and do you use any support ? Thanks

Frizbeekid

I do just Ab crunches flat on my back (no incline) with my legs raised. having had to recover from the long abdominal incision 4 times -I always wait till my abs are 100% recovered, meaning no pain then i tense them up before doing any "core" training what so ever

frizbeekid

Thu Jul 12, 2012 5:34 pm

Thanks Jim. I have been tensing my abs more and more, as time goes on. I'm taking it easy though.
Thanks again.

Bodyrocker22

Sat Jul 14, 2012 1:16 pm

Hey Everyone, I think Jim has given some good advice and obviously sets a good example for us all. Having been physically active all my life before and now after three surgeries, my advice and caution to you would be to listen to your body, start a reasonable training regime based on YOUR person fitness history and if need be under the supervision of a physiotherapistic or exercise physiologist. There isn't anything we can't do so long as you work up to it in an intelligent and inform manner. I do crossfit and other types of very intense physical training. Yoga, pilates, tai chi are also very good non-invasive workouts that can improve your fitness without over-stressing your body, especially when beginning.

Good luck and take care.

Remember, six packs aren't made in the gym....they're made in the kitchen!!

Juuust_Jim

Sat Jul 14, 2012 3:32 pm

Bodyrocker22 wrote:

Remember, six packs aren't made in the gym....they're made in the kitchen!!

That's so true!!! I watch and shake my head at guys at the gym doing a 30 min routine just on the abs -using a high inclined bench and added weight resistance -only boxers/fighters need to work their abs that hard. -So like you said having cut abs is from dieting and having an extremely low body fat %.

I told a number of Ostomy friend -who have asked if and how they could strengthen their stomach muscles without injury being they were not physically active prior to surgery? - and I have always suggested they use the old 1950's Charles Atlas techniques -of Dynamic tension. When watching TV in you most comfortable chair or even sitting at your computer: -just take a deep breathe and lean slightly forward tense you stomach muscles and hold for for a count of 20 -then breathe out and relax - and repeat.

frizbeekid

Sat Jul 14, 2012 3:37 pm

Bodyrocker, I get my six pack at the beer store. LOL

Immarsh

Sat Jul 14, 2012 7:03 pm

Hi Terry,

Everyone gave you some really good answers,  but I'm going to add my own personal experience.  I was "never" in good physical shape...since I got sick at 12, had surgery at 15, and had to deal with 2 very resistant incisional hernias at the base of the scar, that refused to heal.  They left me with a very weak abdominal wall.  I did  marry and have two children, but that increased abdominal weakness, and so little by little, I just gave up doing what I could do....walk,( need orthotics)  swim, ( cronic sinus and ear trouble)  play tennis ( shin splints) bike ride ( sciatica and degenerative dics disease).  The years passed, I developed Diabetes, was grossly overweight....and had develped leg pains, that turned out to be "Peripheral artery disease " ?  we think.  That along with Neuropathy in my feet,  and with arthritis everywhere...and a new " huge hernia on one side of my upper belly.... I could barely hobble.  Asthma....also made it difficult to breathe.

Three years ago, I decided to pull myself  out of bed, off the couch, and "out of the grave"  joined a gym , and hired a trainer for the first time.  This isn't a regular gym....it's a "wellness center, attached to the local hospital, and they work hand in hand with a registered nurse, and support from the certified trainers and physical therapy department.

I met with the head of the trainers....and explained my "issues' and he recoomended someone for me.  It was a 20 something "scrawny" little girl, who barely weighed 100 pounds.  I was so skeptical.  But I have to say, she really knew her stuff.  She got me moving, without any high impact  on my bad feet, legs or back.  We met with a physical therapist, , and found out that I barely had movement in my lower abs, and so they recoomended exercises for me.

I began taking 5-10 classes a week, and thought of the gym as my "get well play ground", often spending more than 3 hours a day there.  I wasn't working at the time.  I did weight training and some machines under guidance.  I did balance and movement classes ( low impact exercises)  some arthritic & chair classes , to concentrate on lower abls. I took water ex classes, and  I did tai chi, and Feldenkrais  to improve mind and body, I also started a beginner pilates class with a fabulous instructor / trainer.

When the gym started the "reformer" program, I tried that too, but found it too difficult, and cumbersome for me.  I needed to re learn how to move my own body.  I got back to swimming, but because my arthritic neck wouldn't turn enough for me to breathe regularly, I started to use a snorkle.  I went from 3 strokes to 10 laps.  From walking 5 minutes, ( for form and motion not cardio speed) I can now do a mile in 30 minutes.  That's great for me.

I lost about 30 pounds, that have been difficult to keep  off, but I'm still working on it.

  I  had mixed messages from my various doctors.  One said, fine, go ahead, while the other was concerned about the abdominal hernia, and wanted me to wear an elastic support band.  I haven't, and it hasn't been a problem so far.

It's been three years now, and I am so much more improved that I can't believe that I "regained" so  much mobility....more than I had in my  40's, & 50's,  and now I'm in my sixties.

My best advice to you, is to not be in a rush.  Work on your whole body....  as well as "your mind".  Research "Feldenkrais" classes in your area.   It's been  fabulous for me.   It's a neuromuscular, slow and gentle stretching class....started by an Israeli Physicist years ago.    It's relaxing, healing & restores mobility through relearning movement patterns, much the way a baby develops.

I hope this has been of some help to you, and to any others who've had the patience to read it.  :))    Working on editing my writing.

Best wishes.

Marsha

TerryD

Sat Jul 14, 2012 9:24 pm

Thanks so much everyone for your comments!  I think this is a great discussion, and just as we all have different ostomy problems we all will have slightly different solutions so reading theses replies is so very helpful!

I feel almost like I have to start all over again!  Before cancer, I was a runner, did weights, a little yoga, a little core training when I felt like it, some Tae Bo and boxing stuff for fun, and swam.  Yes I ate good, my nutrition was pretty good, no smoking hardly a drink but for a nice Corona one or so on the weekend.. I loved running...but now after five years of cancer, five more years of age, a replaced knee (too much overuse in the running) arthritis creeping in..and prolly some osteo issues never mind the killer neuropathy I feel like I have to start all over again.

Anyway - here's the scoop on my first Pilates visit!  Proper Pilates studio, not a group class in the gym.  This studio is run by a woman who is in her 50’s, all kinds of qualifications, been an athlete and dancer all her life, taken many classes herself, studies the Stotts method and has her act together.  Plus she is only 5ft high, not one ounce of body fat and in awesome shape herself.  You have to schedule one on one sessions with her weeks ahead she is so in demand.
Anyway, in I go for my alignment evaluation!  We discussed my entire health history, and had a long discussion about my limitations, but I was so encouraged by her. She told me there would be many things I could NOT do, but having said that there were also many things she could teach me to help myself.  She set me up with a body alignment, both laying down, standing and sitting, I could feel the difference in my posture when she got me in the right positions.  She taught me how to breathe, to lengthen my trunk, to straighten my spine, and isometric excercises like Jim talked about for my internal muscles.

We did some excercises in the machines, the reformer..loved it...and the Cadillac, and we found ways to keep the stress off my hernia.  I. Honestly felt terrific after the one hour session, and I did not hurt the next day, but yet knew I had done some new things with my body.  She gave me exercises to do at home with the stretchy bands, some I had done before, but the big difference for me was her emphasis on correct form and the mental connection with the muscles we were using.  I feel very encouraged!  It has helped me to set some new goals for myself...like you Marsha!  We have to take control of getting our own lives back!

Upped my daily walk to three miles today, and stuck with the atkins diet for yet another day...things are going good!

frizbeekid

Sat Jul 14, 2012 10:08 pm

TerryD, it sounds like you have a good coach, watching out for you and and your health.
Just remember, do what you can and know that the pilates coaches job is to push.. you a little more than you want. Do that little extra being mindful of abdominal muscles. Then have a ice cold Corona and reward yourself. Post how your doing OK ?

Juuust_Jim

Sun Jul 15, 2012 12:20 pm

To TerryD -so Happy that everything turned out so awesome for you!

and to Marsha -great post of you experiences in getting active again -great example of "When there's a will -there's a way" Smile

TerryD

Wed Jul 18, 2012 11:24 pm

Jim, Marsha, Vulcan, frizbkid and bodyrocker thanks so much for your encouraging comments, and thanks too to anyone else just reading who is even thinking of giving input about starting over.

I have been practicing the dynamic tension, and the other moves at home. Got myself back on my elliptical the last few days, and am following a diet finally.  Just making a start and a plan and having that first session seems to have kick started things for me.  Honestly what Marsha says is so true....you have to work on all of you to get healthy again.  I have spent the last six months since my chemo ended just feeling really depressed.  I can't go back to the job I loved the neuropathy is so bad, so I miss the challenges of the job and my friends.  Have really done nothing except a daily slow walk of two miles......

It has really just clicked for me that the hernia is only ONE place on my body!  No reason at all that my arms and legs and aerobic fitness are out of shape!  Heck...I had no problem on the elliptical - my numb and painful feet don't have to even lift like walking!  My legs and butt were doing the work!  Not to mention my heart!  So the last two days I have not taken the Lyrica which makes me feel like crap, and am just weaning myself off Ativan (Lyrica is supposed to help neuropathy but it makes me feel wierd, the Ativan is for anxiety and depression) and I have another Pilates appointment Monday.  Today I completed a very gentle yoga session (DVD) and lifted some light weights for my arms, plus the elliptical.

Here's hoping muscle memory will kick in too!
Hernia is sticking out like baby belly on stoma side, but that's no different than usual.  I am wearing my belt all day and have no pain there.....so - deep breath and keep moving!  I told my Pilates instructor she should make a case study out of me....

Stay safe everyone

frizbeekid

Thu Jul 19, 2012 5:59 am

So true about having mind and spirit along for the ride Terry. You have to want to get better !
I leaned from an old man who live to be 94, to never give up. I watched him keep pushing as long as I knew him which was about 25 years. He would get up early in the morning and stay on the move, if he fell he would get up dust him self off and away he'd go. He had his mind and spirit along for the ride, even if his body sometimes preferred the parking lot. He used to say you can always sleep when your dead. Well now his body is in it's final resting place, but that spirit is in my mind. Never give up.

Frizbeekid

Pilates and ostomy with hernia

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