Stomach Flu Symptoms After Ileostomy: Seeking Advice

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zanzi1
Jul 29, 2012 10:46 pm
I had an ileostomy in 1976 at age 28 for ulcerative colitis with no after effects. I know how lucky I am. In my early 30's I went to Europe and got terrible stomach or what is left of my small intestine pains, with vomiting and liquid output. I lost about 10lbs in weight due to fluid loss.

Nothing signifant after that until I was in my fifties and now I continue get this intermittently. It is really painful and lasts about ten days each time.

Has anyone had a similar experience? Aside from being painful it is driving me crazy since I have no idea what it is and how, if possible, to prevent it.

Thanks in advance for your help.
scotiaman
Jul 29, 2012 11:00 pm
HI..I won,t pretend to know much related to your troubles never having as yet experienced the symtoms, however it is possible that scare tissue ( adhesions) have developed over the years and are now interfering with your nornal digestive track flow, you also might be havings a twist of some type in the bowel and if you have gained significant weight recently, that might be causing some form of blockage or presure on vital organs.... any type of blockage will have some level of associated pain, may cause vomiting...and the stoma flow will be interupted.  Be sure to see a Dr. ...  the pain is telling u their is an issue.  ALL the best
Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


zanzi1
Jul 31, 2012 3:33 pm
Thanks so much for reminding me about the adhesions. I totally forgot to think about that. As an aside, I read your profile information and wanted to tell you that I have been all over Canada from east to west and even PEI but never to Halifax. If I ever get there, which I am determined to, I'd love some info about where to go, stay, do, etc.. And, of course, I'll buy you a cup of coffee (or tea, as the case may be). Stay well, and thanks. -Ann
Past Member
Dec 04, 2013 10:09 pm
I too had my bag in 1976 as a baby, now 37, 3 years ago I got sick, I had not been aboard. I needed to go to A&E. on the Sunday i was admitted to hospital, spent a week in there on fluids, lost a stone in weight. They said I had stomach flu, Still haven't put back all of the weight on. Salt and potasium was almost gone, took me ages to get my strength back, as I am quite active. I've not had this back and don't won't it again, so i do feel for you, do you get the flu jab, I got it done the following year. I also take vitamins.