Hernia under stoma

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1
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5080
blueeyes52
Jul 25, 2013 12:43 am
Please can someone help me I'm in pain I got out of the hospital Tuesday the 23rd because I have a hernia under my stoma I have an ileostomy and I have been in the hospital 3 Times now and I am very sore from throwing up and this hernia is sore. I am going to have surgery August 5th I changed my wafer and bag cuz I had a burning pain and my stoma is swollen and it is sunk in where I can get a good hold and when I push to try to get to seal it hurts really bad. Should I put an ice pack on it. Please can anyone know what I can do. :'(

Any suggestions.
PatinPickering
Dec 01, 2013 4:56 pm
Hi there!  My original (cancer) surgery was September 1990 so I've worn my colostomy appliance for over 22 years.  Since 2007, I'd been having annual colonoscopies, so, I've developed quite a relationship with the same surgeon.  In 2007, after suffering through numerous blockages he decided that a para-stomal hernia was the source of my problem.  We discussed moving the colostomy to the other side (the peristomal skin around my site was a mess but we decided to maintain as much of the remaining colon as possible.  So, in November'07 he did a stomal revision and hernia repair.  It didn't fix the problem so, in July 2010 he referred me to a surgeon who specializes in laproscopic surgery (using mesh).  It took 3 surgeries to get it done (final was May 2011) but the result is spectacular!  These surgeries were in Friday morning and home at noon on Saturday.
Posted by: GoinWithTheFlow

Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.

We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.

We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.

You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻