Hey everyone, what's up? This is the first time that I have been on here in a long time. I have had numerous medical issues that took up all of my time the past year. It really has been nerve-racking. The question that I have is, how do you control the smell from the bag? What I mean is, no matter what I seem to do, the smell seems to come out around the wafer and bag. I can put on a new one and within minutes, I have an odor coming from it! I have no poop in it. I have tried everything that I can think of to eliminate it. I have a good seal, so no problem with leaks, but it sometimes smells kind of bad around me if you know what I mean. I am a very clean person and this makes me feel like I'm not showering or something! I can't stand it anymore. I don't like to go out in public anymore, and I am embarrassed to even be around my loved ones due to this. I don't want them to have to smell it. It really has restricted my lifestyle, and I really like to be social and go out. So I hope that maybe someone out there could please give me some advice on how to manage this. Oh, by the way, I don't like to use anyone's bathroom either. Please help, thanks.
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Posted by: Primeboy
Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!
I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.
On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!
Someone once wrote that our children are the letters we write to the future.
PB
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