Hi. So here it is the weekend and I woke up in a disaster. When my nurse was here yesterday, she put this ring underneath my flange and said it was to help prevent leaks. The whole time I was in the hospital, not only did I not have one on, but not one nurse showed me this step. I had no idea. But prevent leaks? Ha! Everything was soiled! I am on my own, so here I was trying to clean myself up, then all the bedding and mattress. Now I have the bathroom to tackle before my kids come back so I don't gross them out. Ring or no ring? I don't have one on right now because I was so panic-stricken I could barely get the flange on. I am not in a good place right now and am starting to doubt my decision to finally go ahead with the surgery. Better quality of life they said. I don't feel that right now. I am 10 days after surgery.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.


