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Posted by Jenniee, on Tue Jul 01, 2014 1:47 pm

I have just last week had the final part of my reversal surgery and am now fully connected, (which am I very glad about) I was unaware till after the surgery that this meant I would have an small open incision/hole left where my stoma used to be. I am aware this is to allow the wound to heal from the inside out to prevent any type of infection which makes sense. It has to be re-packed and re-dressed every 2 days (something I find very distressing!). I was wondering if anyone has been in this similar situation and could share their experiences with me as i am finding it to be becoming increasingly painful each time it has to be re-packed, and am unsure whether this is just the normal healing process or whether it is a sign of infection. Today the nurse also said that she noticed the edges of the wound had become 'puckered' and I am also unsure of whether this should be happening! 
any experiences with this kind of thing a tall would be greatly welcomed!

Past Member
Reply by Past Member, on Tue Jul 01, 2014 2:02 pm

Hi Jenniee 

When my stoma hole was healing over it was very very painfull for the first few weeks it was being packed and dressed. 

The nurses put this cleaner stuff in the hole and it felt like someone was pouring acid into me.

They said "oh not seen that reaction before"

It did get better the smaller it got and the more flesh grew in the hole, once its healed enought from the inside out it will start to "grow over" from the edges to meet up in the middle.

If it's infected you will know it will smell different not the like normal icky smell!

it will probably hurt like mad all the time too.

My hole was huge it took 6 weeks before it was closed properly, eat lots of protein.

relax take it easy.



Reply by Jenniee, on Tue Jul 01, 2014 2:44 pm

Thanks for your reply sam :)

Agh I was hopeing to hear that they may be able to help a bit with the pain whilst re-dressing, but i guess that was just wishful thinking! I am not looking forward to these next few weeks :(

when you say your hole was 'huge' how big is that? and are you refering to the depth or the width? 

(just so i can get some sort of general idea of how long mine could take to heal) 


Past Member
Reply by Past Member, on Tue Jul 01, 2014 3:26 pm


It was 6cm long 3cm wide and about 3or4 cm deep. There is photo of my scars that was taken fairly recently on my pics.

I did take a few photos of it along the way but its probly best I dont put them up here as its a big gross hahahah.


Reply by Jay , on Sat Nov 29, 2014 8:52 pm

hi, I recently had the partial colectomy, and was told I could get it reversed in 3 months. Now the surgeon is saying 6 months is better. I'm really looking forward to getting the bag off, but now I have seen several horror stories about the reversal. One guy said that the pain is worse than the original surgery? Thank you for your post, the hole is not something I had been informed of. So has your pain been that horrible? What about leakage? Which u also read about. I apologize if anything I asked or wrote is inappropriate. I'm new to this

Reply by Squeeze43, on Sun Nov 30, 2014 12:38 pm


i had a reversal done and it was the worst thing I ever had done, I've now got a permanent colectomy,  I had no feeling in back passage due to surgery's , 

i know others that have had it done and had no problems hun,  i

i hope it goes well for you I will keep my fingers x for you.

i live in permanent pain now due to surgery's and complicate's 

Reply by Jay , on Sun Nov 30, 2014 1:43 pm


thanks for your reply and encouragement. As much as I want the reversal, I am really scared of another abdominal surgery. There has been so many complications so far I'm not sure how much more I can take. People around me don't seem to get it. Everyone including the Dr tells me how good I am doing, both with healing and taking care of the colostomy bag. Although it is nice to hear in general the truth is most times I feel like crap. Something is always hurting. And usually I try to hide it from my family who seems to think that I am "milking" it. So this forum is great for me. I've gotten alot of insights that the doctor didn't share.

I was supposed to get the reversal in December, now he's saying February or March. So I wonder if several years from now I will still be in the same position? Or, get the reversal and end up worse? Guess we'll see .

anyway, squeeze43, I think you are gorgeous and I really hope you hope you meet someone. If I was in the UK I would definitely come give you a squeeze (hug),

Reply by Squeeze43, on Mon Dec 01, 2014 9:48 am

Hi jay, 

i understand what you are saying with how you are feeling, it's painful and I found the first yr I felt crappy,  my stoma nurse was really good tho she said it would take about a yr before my body would fully settle down.

my family didn't and still don't understand how most of the time you don't feel good and the pain your living with day in day out.      

Remember im always here if you fancy a chat jay we all need someone to talk to that understands everything.

if they are putting back the operation why?  Is what I would be asking as the longer the bag in on the harder the reversal the doctors told me that,  

i hope you find out what they are doing with you hun,  ask the doctor tell them you want to know everything.

thinking of you jay 


Reply by CharK63, on Sun Mar 13, 2016 10:00 am


I'm 9 months post surgery and going for first reversal consult this week. I have inverted stoma so I can't seal pouch opening. The stool pushes out the barrier so I have constant contact with fecal matter. I've learned crusting method of layering stoma powder and skin protectant and that helps some.

I also hurt when passing seeds or something that I forgot I couldn't eat. The worst pain though is from too hard of stool. I dnt eat any vegetables so I control with stool softeners. I need to be firm enough to direct stool through pouch but it's not easy to control.

I take pain medication and that hardens the stool and creates more pain. I feel I'm down because of pain more often than I'm feeling good. I resolve to start exercising to make me feel better then something goes wrong and I'm flat on my back. And that's always right when my grandkids are coming to see me. They're my greatest joy and I want to interact with them not be checking on my bag constantly.

I feel that the pain is showing on my face in a hard set of my jaw trying to bear it. My family doesn't doubt my pain but I choose not to tell them all the time because I think I should be well by now and I don't want to be that kind of person.

I don't no what normal is but it sounds like I've got a long row to hoe. Wish me luck please.



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