Maybe facing resiting of colostomy stoma and just not sure how bad this is going to be. Have had other problems through the many years I've had colostomy, and not looking forward to the idea of this. Retracted and mishapened stoma along with recurrance of parasromal hernia causing episodes of leaking and blowouts. Anyone who maybe has information on this condition could help would be appreciated.
Holeinone
Aug 26, 2017 4:45 pm
Immarsh
Aug 28, 2017 3:12 pm
Not trying to be funny, but it's a "crap shoot". I have an ileostomy...the same stoma for over 50 years. It's shrunk, and pulled back so it's almost flat with the skin. One surgeon I saw a few years ago, said that I should stay with the one I have for as long as possible, as there's not much " good space" on my abdomen, to reset it. and they can't use the same site. So my stoma and I will remain " the same age".... unless it gets worse. You have to weigh the advantages. Not an easy deision. Best of luck Marsha
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Holeinone
Sep 15, 2017 5:07 pm
Thank you for your input and I know that some say leave it and others say it only gets bigger the longer you wait. I'm waiting for appointment with surgeon and Ostomy nurse to see what they have to add to my decision. Don't really want to deal a strangulated bowel.
Thank you and keep in touch Holeinone, Ontario
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