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Hair Loss after Ileostomy

Posted by freedancer, on Mon Sep 25, 2017 2:03 am

Have any of you folks had any trouble with losing large amounts of hair after you had your ileostomies?   My hair is falling out by the hand fulls.  The doc did check my thyroid levels and found my T4 to be 40. She raised up my medication and added a new med for the T3. She thinks it may be a problem with absorbing the drugs.  Did any of you have this issue?  How did you work with this issue?  This is very distressing to me because I have always had very healthy hair and no issues such as this.  Any suggestions how to deal with this would be helpful.   Thank you.

Reply by aVian, on Mon Sep 25, 2017 3:01 pm

I had an emergency subtotal colectomin end of february...several months later my hair stated falling out and my nail bed showed a line as if the growth plated stopped.  Well its been six months and my hair is all growing back.  I probably lost like 40% of it.  all is good now.

Reply by LadyHope, on Tue Sep 26, 2017 11:48 pm

I heard that major stress, surgery or trauma could promote temporary hair loss.  That being said, once things settle, hair growth and thickness should return.  During these stressful periods, I diid my best to reduce stress through exercise, balanced diet and daily vitamins.  Prior to my colo-rectal surgery, I bought a lovely wig just in case.  I still wear it from time to time. It is great. 

Reply by dadnabbit, on Wed Oct 04, 2017 5:48 pm

Freedancer, When I first had my surgery resulting in an ileostomy I suffered a lot of hair loss.  At first I chalked it up to the remicade treatments as the doctor suggested.  I have since learned that the lack of nutrient absorption is the more likely culprit.  The large colon is the way our digetive system slows things down in order for the small intestine to do its' job of absorption of nutrients.  When that is removed, the transit time is much quicker, and there is less time for the nutrients to stay and get absorbed.  You will also find that coated meds and time released meds are no longer effective and often pass through completely unabsorbed.  If you take a time released med you should have your dr. change the script.  Your body will adjust to the new absorption rate, but supplementing with a vitamin is not a bad idea.  I have found I no longer absorb potassium and have required a script for this as supplements over the counter are NOT the same thing.  Good Luck.


Reply by sherileo, on Thu Oct 26, 2017 3:23 pm

I had my subtotal colectomy in June 2017, I noticed in August that my hair was falling out....between June 5 and July 10 I had gone from 125lbs to 80lbs. I lost a lot of weight and was barely eating. Throughout August and Septmber (while still hospitalized) I noticed my hair falling out...I asked my doctors about it, no one seemed concerned at all, one told me "this si normal due to stress and malnutrition". So once I was finally discharged and started coming out in HUGE chunks in the shower....I had to cut it off (what was left of it). What the doctors failed to do was offer any advice on what can help the regrowth...biotin and iron supplements, my hair dresser also suggested collagen supplements. I am taking all of them, and I've also started using "Nioxin" shampoo which is normally recommended to chemo patients who lose their hair to help with regrowth and to slow down the hair loss. I'm finding its helping...slowly....

I hope this has helped, cause I honestly wish I knew about this all back in July as opposed to crying in the shower as chunks of my hair continue to fall out. I've included pictures of my before and after hair loss to give you an idea of what I'm going through.


Reply by LadyHope, on Fri Oct 27, 2017 3:17 pm

Hang in there.... it is awful when your hair falls out.  I am so sorry.  Just a suggestion.... there are very nice wigs that look just like real hair.... some are made with real hair.  Maybe you could buy one until your hair grows back again.  Since my surgery, my hair has been very tempermental.... it grows in and sheds out.  Taking the vitamins is very good and eating a high protein diet as well.  Also, what about a trendy short cut...??? I complimented someone the other day with this very edgy hairstyle and she said thank you, I lost my hair from chemo and now it is growning back.  Good luck to you.

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