Hello, I'm new to the website, while there are similar cases I have read in other posts (and have found extremely useful and inspiring), I'm writing for reassurance.
I was diagnosed with UC at the age of 16, underwent subtotal colectomy and ileostomy op at 19 after the severity increased, and have had no monitoring up until last week, flexible sigmoidoscopy, I'm now 30, 11 years!
I found the sigmoid procedure to be absolutely agonising. I ended up on gas and air and they couldnt complete it. They did however have the time to take a couple of frightening looking photographs and take 2 biopsies. I've had a leaking rectal stump from the day of my op, which at the time I was told was to be expected and I'd still have flare ups. During the last year the flare ups have been a lot more persistent, painful and bloody. I've not had any treatment during this time and I'm really concerned, given the amount of time that has passed, that something more sinister has developed. The time lead time for biopsy results is 1-2 weeks. I'm keen to know if anyone else has had a similar experience and what path they took? I'm 90% sure I'll go ahead with the rectal stump removal op, as I don't feel I'm suited for a reserval due to the complete lack of control I've suffered from. My sigmoid doctor has recommended a MRI, I'm not sure if this is due to the pain I was in or because she spotted something worrying. I'm waiting, nervously, for news. Any advice, insight, similar experience would be greatly appreciated. Thank you so much in advance, Chris