Hi has anybody heard of the "magnetic" stoma bag & ring? Can you obtain from suppliers or does it need to be surgically implanted? Also is it a help of hindrance??
Gnomeo
Oct 16, 2018 10:25 pm
iMacG5
Oct 18, 2018 7:20 pm
Hi Gnomeo. Never heard of this and would like to know more about it. I'm certain I wouldn't purchase anything like this, but I'm very concerned about the marketing techniques. Sometimes, some of us with issues like ours become prey to questionable entrepreneurial efforts disguised as great improvements.
Please let us know if you learn more.
Thanks,
Mike
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
BeachBum61
Oct 29, 2018 1:36 am
Ive never heard of this but I do prder from this site,maybe ask doctor
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