For those new to iliostomy, I want you to know that it gets easier over time. The first few months were difficult with constant fear of a blowout / bag failure. Over time and trying several different products, I came to depend and feel safe using certain products. Don't be afraid to experiment with different ones until you find what works for you. I now typically go for 3 or 4 days between changing pouch and haven't had a failure for 6 months.
Some adjustments I've made: Because waistline cuts across my pouch, I usually keep my fly partly open and keep pants up with suppenders. Then wear long shirts to keep covered. I wonder how others have dealt with this.
A continuing problem is the need to empty two or three times during the night. My problem is that once up, I am typically awake for an hour or more. So I can only recall one night of complete sleep in the last year.
As far as what I eat - Any thing I used to eat - It all travelled the same route before my surgery so it should do fine now. Well, I do avoid carbination and limit very gassy foods.)
I am feeling confident enough now to consider taking an extensive road trip.
