This topic is about how having an ostomy can affect the activities, hobbies, and lifestyle choices of those living with it. The originator, who has an ileostomy and short-gut syndrome, shares some personal experiences and seeks advice from others in the community. Here are some insights and tips shared by fellow ostomates:
- The originator misses spending long periods in the pool or ocean due to concerns about the adhesive loosening from water exposure, sweat, or heavy activity. They also avoid contact sports to prevent the pouch from being hit or bursting.
- Sleep can be disrupted due to the need to empty the pouch frequently overnight. Some find that minimizing food and liquid intake in the evening and identifying safe foods before bedtime can help improve sleep duration.
- For swimming and water sports, using an Aqua Seal every time the wafer is changed can help keep the appliance secure. It's also wise to carry extra tape and emergency supplies when near water.
- Contact sports are generally avoided, with many opting for lower-impact activities like running, bicycling, hiking, or camping. Those with a peristomal hernia might replace exercises like crunches and push-ups with cycling or other core-neutral workouts. Often, aging is a bigger factor than the stoma itself, so modifying activities rather than quitting is encouraged.
- To manage diet and output, some use Imodium with each meal to reduce output volume. Eliminating oils and butter can lower output and odor for some, while others avoid oil entirely. Short-bowel patients might reduce high-fiber foods like melon, popcorn, and seeds, with freezing melon as a more tolerable option.
- Clothing choices may change, with many opting for looser tops or tighter pants to disguise the pouch. Dressing sharply is still possible with a bit more planning.
- Long-term ostomates emphasize focusing on what can still be done rather than what is lost. Travel, including small planes, cruises, and international trips, is achievable with preparation and spare supplies. Support groups and ostomy-visitor programs offer valuable perspective and practical tips.
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