Living with a parastomal hernia can be challenging, and it's natural to seek advice from others who have been through similar experiences. Here are some insights and tips shared by people who have dealt with parastomal hernias and their treatments:

1. Surgical repair outcomes can vary significantly. For instance, one person had a repair that failed within a year, but a second repair by a more experienced surgeon has lasted 16 years, with only a small hernia visible during a colonoscopy.

2. It's highly recommended to choose a surgeon who frequently performs parastomal hernia repairs, as their experience can make a big difference in the outcome.

3. When it comes to mesh repairs:
- Standard synthetic or biological meshes might not always be successful. Some people have needed a second mesh within a year, while others have experienced complications like mesh integrating into the small intestine, leading to serious illness and the need to relocate the ostomy.
- Individuals with Crohn’s disease may have a higher risk of rejecting mesh or other foreign materials.

4. Non-mesh issues can also arise. For example, absorbable sutures might cause granulomas, which could require removal surgery.

5. For those managing hernias conservatively, several members suggest:
- Wearing an ostomy hernia belt as soon as a small hernia is detected. These belts can help support the area and may slow the hernia's growth.
- Continuing to use the belt if surgery is delayed or if living with a hernia long-term.
- Keeping an eye out for acute symptoms like pain or obstruction. If these occur, it's important to call emergency services and head to the ER for imaging and possible urgent surgery.

6. Certain factors can worsen or trigger hernias, such as rapid successive pregnancies or significant weight gain after losing weight. Maintaining a healthy weight is advised.

7. If multiple repairs have failed, other options might be considered, such as using different mesh materials or relocating the stoma to the opposite side. These decisions often depend on overall health and insurance or Medicare considerations.