This topic is about an individual with an ileostomy who is experiencing severe abdominal pain due to fluid pockets. These fluid pockets have led to multiple hospitalizations, and the person is seeking advice on the cause and long-term management of this condition. Here are some helpful insights and advice:

1. The person has been hospitalized three times in a year due to severe abdominal pain from fluid pockets. Each time, up to a liter of fluid is drained by a radiologist using a needle. Initial thoughts were that these were large ovarian cysts, but imaging now shows pressure on the uterus and intestines. Despite this, doctors suggest repeated drainages instead of further diagnostic procedures.

2. A follow-up appointment with a gastrointestinal surgeon is scheduled, and a hospital patient advocate has been requested to help with coordination and clarification.

3. If there is a lack of consensus among specialists, it is important to seek multiple opinions from:
- Experienced abdominal or colorectal surgeons
- Ob-Gyn or gynecologic oncology specialists
- Highly regarded radiologists for new interpretations of imaging

4. Before any new consultations, obtain and keep copies of all surgical reports. Highlight any unclear sections and ask each surgeon to explain them.

5. Inquire specifically about peritoneal inclusion cysts, which have been reported by others with prior abdominal surgery. These cysts can refill after being surgically removed or drained. Management typically involves periodic image-guided drainage, but a long-term cure is not currently available. Repeated drainages can lead to more scar tissue and complicate future procedures.

6. Be aware of the risks associated with drainage procedures. For example, one person experienced an injury to the epigastric artery and cardiac arrest during a procedure, resulting in the placement of five platinum coils. It's important to balance the frequency of drainage with comfort and risk.

7. Consider the initial placement of surgical drains during any future abdominal surgery to help manage postoperative fluid.

8. Keep personal medical records secure, as surgeons may retire or change practices, making records difficult to retrieve.