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Jan 03, 2021

Rectal stump removal surgery - insights and experiences?

This topic is about the experiences and advice related to undergoing a surgical procedure called a completion proctectomy, which involves removing a diseased rectal stump and making an ileostomy permanent. Here are some insights and tips shared by others who have gone through similar experiences:

1. Pain Management and Positioning
- Many people found that the pain was not as severe as they anticipated, especially when managed with prescribed painkillers.
- You might experience significant soreness in the perineal area, often referred to as "Ken butt." Lying on different sides and changing positions every 4 to 5 hours can help.
- It's advisable to avoid sitting directly on the wound for about four weeks. When you do sit, use a very soft pillow or an Air Waffle Cushion, which is an inflatable medical cushion.
- Avoid using donut-style cushions as they can increase tension on the incision.

2. Daily Living During Early Recovery
- Lying on your side can make eating and managing your ostomy bag a bit tricky, but it becomes easier with practice. Keep your supplies within reach before lying down.
- Take your recovery slowly. Pushing yourself too hard can increase pain and slow down the healing process.

3. Hospital Stay
- Hospital stays can vary, but one person mentioned staying only a few days. Generally, you might expect to stay around 4 to 7 days, depending on the surgical approach and any complications.

4. Sexual Function and Impotence Risk
- There is a risk of nerve damage during the surgery, which can lead to erectile dysfunction, though outcomes can vary.
- One person experienced a complete loss of erectile function after a tumor-related proctectomy, which was discussed with the surgeons beforehand.
- It's important to discuss all options for preserving sexual function with your surgeon before the procedure. Make sure to talk about potential impacts on erections, ejaculation, and other sexual activities to have clear expectations and consent.

5. Mental Health and Support
- Staying mentally strong is crucial. Consider seeking psychological or sexual-health counseling if needed.
- Engaging with support forums can provide ongoing peer support and encouragement.
See full discusison
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