This topic is about managing a urostomy pouch while enjoying activities like golfing and bowling after having bladder removal surgery. The person is looking for practical advice on how to keep the pouch secure and comfortable during these activities. Here are some helpful tips and insights shared by others:
1. Consider using a Nu-Hope belt for extra support. Some people have found it helpful, especially for activities like golf.
2. Recovery can be slow, especially if there were temporary kidney issues, but it's possible to return to bowling and golf within weeks.
3. Elasticated boxers from Comfizz can help prevent the pouch from moving around too much during physical activities.
4. To manage the pouch effectively:
- Always carry an emergency kit with spare supplies, including a pouch, wafer, skin-prep wipes, and disposal bags. Keep one in your car and another in your golf bag.
- Adhesives usually hold well during sports, but wearing snug, supportive underwear can help. Elasticated support garments or waistbands can keep the pouch flat.
- Consider using hydrocolloid security strips for extra hold around the flange.
5. For additional support, hernia belts can be useful:
- Nu-Hope hernia belts are popular for golf and everyday use, offering firm support with a wide strap.
- Stealth Belt is another option, though it provides slightly less support with its narrower strap.
- Custom hernia belts are wider and can boost confidence; they might be covered by insurance.
6. General pouch management tips include:
- Using a one-piece appliance for simplicity, with many people changing it every 48 hours and checking the wafer each time they empty it.
- Bringing extra supplies on the golf course is wise. If you need to empty the pouch mid-round, you can use the woods or a porta-potty like other golfers.
7. Physical recovery and playing level can vary:
- Some people return to the golf course in about 3 months but may take around 6 months to regain full stamina.
- Accepting slightly reduced distance and letting the club do more work, such as choosing a 7-iron instead of an 8, can be helpful.
8. The community is a supportive space for medical advice, friendship, and social interaction, often described as a "new family" by its members.
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