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Sep 24, 2021

When will I feel like myself again after an ileostomy?

This topic is about the journey of adjusting to life after an ileostomy, a type of surgery where an opening is made in the abdomen to allow waste to exit the body. The person sharing their story had unexpected surgery due to an ovarian tumor and is now living with an ileostomy. They are struggling with feelings of discomfort and self-consciousness, and are seeking advice on when they might feel like themselves again.

Here are some helpful insights and advice from others who have been through similar experiences:

1. Emotional and Psychological Adjustment
- It can take years to adjust emotionally, and some people may never feel exactly the same as before. However, many gradually accept a "new normal."
- Traumatic surgery can lead to prolonged stress or PTSD. If self-help methods like journaling, setting goals, and focusing on positives aren't enough, short-term professional counseling might be beneficial.
- Looking forward with strategies like creating a bucket list and avoiding dwelling on "why" can help maintain a positive outlook.
- Support from family, friends, and online communities is incredibly important.

2. Hope for Reversal
- There is hope for reversal, as shared by someone whose relative had a successful reversal six months after surgery. Staying healthy and positive can improve the chances of being eligible for reversal.

3. Skin Irritation and Product Tips
- Blisters might be an allergic reaction to the adhesive on certain products. It's a good idea to request free samples from different suppliers and consult a stoma nurse to try out various wafers, barrier rings, or hydrocolloid formulas.

4. Aqua Seal Details
- Aqua Seal by Costa Medical is an ultra-thin circular film with adhesive on one side. It is applied over the faceplate and under the flange.
- This waterproof seal helps prevent edge lift, friction, and leaks. Many users report being able to wear it for 7–8 days, even with a flat stoma, allowing them to engage in normal activities like work, long walks, and hiking.

5. General Health Considerations
- People with an ileostomy can dehydrate easily, so it's important to stay hydrated with fluids like Pedialyte, Gatorade, clear liquids, and green tea with lemon.
- A surgeon suggested the probiotic VSL#3 for managing IBS or ulcerative colitis, though it's not effective for Crohn’s. There are other high-potency probiotic brands available.

6. Perspective from Long-term Ostomates
- Many people with ostomies lead full lives, including working, traveling, and hiking, once they master their equipment and mindset.
- Remember, "You are still you" despite having an ostomy. It doesn't have to limit your future goals or happiness.
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