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Apr 24, 2022

Q

This topic is all about managing life with an ileostomy, focusing on practical aspects like diet, exercise, and how often to empty the pouch. Here are some helpful insights and advice shared by others who have experience with ileostomies:

- **Emptying Frequency & Volume**
- People with an ileostomy might empty their pouch anywhere from 3 to 12 times a day, depending on factors like diet and fluid intake.
- Eating more frequently, having larger meals, or drinking more fluids can increase output.
- If you notice your output is consistently more than about 5 cups (1.2 liters) a day, it's a good idea to talk to your surgeon or ostomy nurse.

- **Diet & Hydration**
- Introduce new foods slowly and pay attention to how your body reacts, as everyone is different.
- Foods like lunch meat, pasta, and skinless cucumber can thin output, while high-fiber foods might be challenging, especially early on.
- Chew your food well and consider having several small meals instead of large ones. Stopping food intake by 6 p.m. can help reduce nighttime emptying.
- Stay well-hydrated; some people need up to 100 ounces (3 liters) of fluids daily to avoid dehydration.
- Supplements like liquid multivitamins, B-12, and vitamin D₃ might be necessary. Beano can help reduce gas for some people.
- A guide called “Dietary Advice for Ostomates” is available from Coloplast.com.

- **Appliance Wear & Leak Prevention**
- Most people change their pouch every 5 to 7 days.
- If you experience persistent leaks, consult with an ostomy nurse to ensure you have the right fit and product.

- **Exercise, Core Work & Hernia Prevention**
- Wait 6 to 8 weeks after surgery before starting exercise, and begin gently.
- Strengthening your core before surgery can help reduce hernia risk, but be cautious, especially with larger colostomy openings.
- Safe exercises include planks and gentle leg lifts, but avoid heavy crunches early on.
- Wearing a hernia belt or support and avoiding heavy abdominal straining for several months is recommended.
- Once healed, most activities are possible with some planning and awareness.

- **Night-time Management**
- Those with high output might set alarms to empty their pouch 2 to 4 times overnight.
- Limiting food and drink in the late evening can help reduce nighttime output.

- **Long-term Experiences**
- Many people have lived happily with ileostomies for decades, finding that life adjustments become routine and don't have to limit travel or hobbies.
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